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Tag Archives: confidential

Do parents even know their children’s school data has been given away?

26 Saturday Apr 2014

Posted by Mike Sivier in Business, Children, Conservative Party, Education, Employment, Liberal Democrats, People, Politics, UK

≈ 18 Comments

Tags

absence, attainment, Big Brother Watch, Civil Liberties, Coalition, confidential, Conservative, data, Deloitte, Democrat, ethnic, exam, exclusion, free school meal, gender, government, health record, language, Lib Dem, Liberal, Mike Sivier, mikesivier, Mumsnet, National Pupil Database, NPD, Owen Boswarva, people, politics, pupil, sale, school, sell, SEN, sold, special educational needs, tax record, test, Tories, Tory, Vox Political


140426schooldata

Fellow blogger and Vox Political reader Owen Boswarva has delivered frightening proof of the way parents have been sidelined by Michael Gove’s Department for Education, in order to give away – not even sell – confidential information about our children to private companies.

Mr Boswarva said he had written a blog post about the issue last year, in which he stated his concern about “the low profile of DfE’s NPD initiative. Most of the consultation responses are from organisations with an interest in re-using the data, leavened by some cautionary advice from civil society groups. There are only a couple of responses from schools and a half-dozen or so responses from individual parents (consistently opposed to the proposals).” [Emphasis mine]

“There appears to have been no concerted effort to bring the consultation or the NPD initiative to the attention of parents or pupils (i.e. the data subjects themselves). This is a quote from one of the parents who did respond: ‘I am shocked and appalled that I wasn’t notified about this consultation through my child’s school — I read about it on Twitter of all things. A letter should have gone to every single parent explaining the proposals and how to respond to this consultation.’

“(Now imagine that sentiment amplified via Mumsnet …)”

His full article is available here and makes absorbing reading as it features all of the responses to what the DfE (laughably) called its “consultation”.

In his comment to VP, Mr Boswarva wrote: “Some civil liberties organisations (including Big Brother Watch) did respond to the DfE consultation… The implemented access regime is not quite as bad as the original proposals, but I agree we should be concerned.

“For me the main issue is that parents (and pupils themselves, who are the actual data subjects) are unaware of how the personal data is being shared with third-party organisations.

“There was no press release or any other broad communication to the public when access to NPD data was expanded. (It’s worth noting that most of the broadsheets [newspapers] have been given access to Tier 2 pupil data themselves, so they are probably not keen to rock the boat.)

“If you want to get into the detail of what DfE is up to with the NPD, try this Deloitte report: National Pupil Database: Exploiting the benefits of releasing the data.”

I have yet to do so (time being against me) but I invite any readers with an interest to download the report, go through it, and report your findings.

I’m off to find a contact address for Mumsnet.

Addendum: I’ve amended this article after Mr Boswarva contacted me to point out that the DfE isn’t, in fact, selling pupil information – the department is giving it away for free. In my opinion this makes its actions even worse. What do you think? (Thanks are due to Mr Boswarva, whose full communication should appear in the comment column below.)

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School pupils’ details are being given away by the government

21 Monday Apr 2014

Posted by Mike Sivier in Business, Children, Conservative Party, Education, Employment, Liberal Democrats, People, Politics, UK

≈ 27 Comments

Tags

absence, attainment, Coalition, confidential, Conservative, data, Democrat, ethnic, exam, exclusion, free school meal, gender, government, health record, language, Lib Dem, Liberal, Mike Sivier, mikesivier, National Pupil Database, NPD, people, politics, pupil, sale, school, sell, SEN, sold, special educational needs, tax record, test, Tories, Tory, Vox Political


Selling their future: Michael Gove's Department for Education has put pupils' confidential information up for sale.

Selling their future: Michael Gove’s Department for Education has put pupils’ confidential information up for sale.

Thanks are due to the Vox Political reader who flagged up the fact that, while plans to sell British citizens’ health records and tax details are currently delayed or in consideration, confidential information about our children is already being passed on to private companies.

Researchers and third-party organisations can apply for detailed information from the national pupil database (NPD), covering pupils at schools and colleges in England.

This includes test and exam results, details of prior attainment and progression at different key stages for pupils in the state sector, attainment data for students in non-maintained special schools, sixth-form and further education colleges, and information on pupils in independent schools, where available.

The database also includes information about pupils’ characteristics, such as gender, ethnicity, first language, eligibility for free school meals, special educational needs (SEN), and pupil absence and exclusions.

Why would anyone want to use such information commercially?

Extracts of this data are available for use by any organisation or person who, “for the purpose of promoting the education or well-being of children in England”, are conducting research or analysis, producing statistics, or providing information, advice or guidance. To whom?

The available data is arranged into ‘tiers’, as follows:

  • Tier 1 – the most sensitive personal information
  • Tier 2 – other sensitive personal information, including less sensitive versions of tier 1 data
  • Tier 3 – school-level data
  • Tier 4 – other pupil-level data, for example, attainment, absence and exclusions

Users can even request bespoke extracts, with a member of the NPD Data Request team on hand to advise on the approvals process, and whether the information requested is available.

The NPD is also linked to the further and higher education sectors, using data from the individualised learner record (ILR) and Higher Education Statistics Agency (HESA) student record.

Users can request linked information in the following combinations:

  • NPD linked to ILR data
  • NPD linked to HESA student record
  • NPD linked to both ILR and HESA
  • Individualised learner record linked to HESA student record

You will not be consulted on whether you wish to allow your child’s information to be given away.

This means a huge amount of information about your children is now available to third parties and – considering the government guidance note from which this information is drawn is almost a month old – may already have been handed over.

Confidential information on – for example – exam and test results, special educational needs, absence and exclusions, and eligibility for free school meals could have a serious impact on a pupil’s prospects in adult life, if used to inform organisations that are hiring school leavers, for example.

There are safeguards. Organisations requesting information need to demonstrate that they comply with all relevant requirements of the Data Protection Act 1998, including proving that they are registered with the Information Commissioner’s Office to process personal data or fall within an exemption, have appropriate security arrangements in place to process the data, intend to use the data only for a specified purpose, will keep the data only for a specified length of time, and will not share the data without our prior written approval.

Considering this government’s track record, how safe does that make you feel?

If you want to read the guidance note yourself, it may be found here.

Addendum: I’ve amended this article after Owen Boswarva contacted me to point out that the DfE isn’t, in fact, selling pupil information – the department is giving it away for free. In my opinion this makes its actions even worse. What do you think?

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Now the Tories want to sell your tax details to private firms

19 Saturday Apr 2014

Posted by Mike Sivier in Conservative Party, Corruption, Politics, Tax, UK

≈ 21 Comments

Tags

advertiser, agencies, agency, autumn statement, BBC, benefit, Big Brother Watch, budget, Coalition, companies, company, complaint fatigue, confidential, Conservative, contract, credit rating, Customs, data, David Gauke, disabled, discrimination, Dun & Bradstreet, Emma Carr, Equifax, Experian, firm, government, hm, hmrc, identification, identify, medical record, Mike Sivier, mikesivier, multinational, NHS, out, outcry, politics, price, privacy, private, private sector, pseudonymise, public, retailer, Revenue, risk, sweetheard deal, tax, The Guardian, Tories, Tory, Treasury, Vox Political, work


[Image: The Guardian.]

[Image: The Guardian.]

Not happy with its attempt to sell your health details to private companies, the moneygrubbing Conservative-led Coalition wants to sell off your personal tax data to companies, researchers and public bodies.

The government is considering how much to charge for the information, and claims that all data accessed by third parties will be “confidential”.

But the public has already been stung once by the Coalition’s incompetent attempts to go commercial. The proposed initiative to share NHS medical records with the private sector had to be suspended after a public outcry over “pseudonymised” data – a process by which medical records were said to be anonymous but it was in fact possible to trace exactly whose they were.

The plans for HM Revenue and Customs to share its data are, apparently, being overseen by Treasury minister David Gauke, whose relaxed attitude towards private firms led him to sign off on the infamous “sweetheart deals” that allowed multinational companies to keep billions of pounds of tax that they owed to the Treasury but didn’t want to pay.

Worse still, it turns out the government has already allowed private firms access to our data.

The government has strict rules about what can be released outside HMRC, with a near total ban on data sharing unless it is beneficial for the organisation’s internal work. But according to The Guardian, despite the restrictions, HMRC has quietly launched a pilot programme that has released data about VAT registration for research purposes to three private credit ratings agencies: Experian, Equifax and Dun & Bradstreet.

To comply with the law, the private ratings agencies, which determine credit scores for millions of people and businesses, have been contracted to act on behalf of HMRC and are “therefore treated as part of the department” – giving them access to tax data about businesses that would otherwise be confidential.

The government’s plans to change the law to allow the sale of anonymised individual tax data and release of the VAT register were buried in documents as part of the autumn statement and recent budget.

An HMRC spokesman told the BBC: “HMRC would only share data where this would generate clear public benefits, and where there are robust safeguards in place.

“Last year’s consultation made it very clear that there would be a rigorous accreditation process for anyone wanting access to the data and that any access would take place in a secure environment.

“Those accessing data would be subject to the same confidentiality provisions as HMRC staff, including a criminal sanction for unlawful disclosure of taxpayer information.”

So there. Do you feel better now?

Emma Carr, deputy director of civil rights campaign group, Big Brother Watch, doesn’t. She said: “The ongoing claims about anonymous data overlook the serious risks to privacy of individual level data being vulnerable to re-identification.

“Given the huge uproar about similar plans for medical records, you would have hoped HMRC would have learned that trying to sneak plans like this under the radar is not the way to build trust or develop good policy.”

Ross Anderson, a professor of security engineering at Cambridge University, told The Guardian the information could be highly useful to credit rating agencies, advertisers, and retailers wanting to practise price discrimination.

“This is going to be a big battleground,” he said. “If they were to make HMRC information more available, there’s an awful lot of people who would like to get their hands on it. Anonymisation is something about which they lied to us over medical data … If the same thing is about to be done by HMRC, there should be a much greater public debate about this.”

It seems the Conservatives in the Coalition are determined to sell information that doesn’t belong to them, and intend to grind us down with a relentless bombardment of initiatives and plans until they succeed.

They seem to by relying on the possibility that we will get ‘complaint fatigue’ and give up any protests. This is how they have beaten disabled people into submission to the draconian system for withdrawing state benefits from them; the system for appealing is drawn-out and convoluted, and many people with illnesses are too tired or weak to go through the process.

Also, this is another way of contracting-out government work to private firms, as evidenced by the VAT “research” that has been handed over to credit ratings agencies.

You can be sure of two things: Your data is not safe in their hands, and they won’t stop trying to sell it until they have been pushed out of government.

What are you going to do?

UPDATE: Campaigner Patrick Olszowski has responded to my challenge by launching a petition on the Change.org website. Please visit and sign!

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The end of patient confidentiality as NHS information is sold to insurers

24 Monday Feb 2014

Posted by Mike Sivier in Business, Conservative Party, Corruption, Cost of living, Health, Liberal Democrats, People, Politics, UK

≈ 32 Comments

Tags

agencies, agency, BBC, betray, care.data. General Patient Extraction Service, charities, charity, Coalition, companies, company, confidential, Conservative, credit, Daily Telegraph, database, Democrat, Department, drug, England, firm, form, George Freeman, government, GP. record, GPES, health, HSCIC, information, Information Centre, insurance, insurer, Jeremy Hunt, Lib Dem, Liberal, lie, lying, medConfidential, Mike Sivier, mikesivier, National Health Service, NHS, opt out, patient, Patients4Data, people, pharmaceutical, politics, premium, private, pseudonymise, Research, scaremonger, sell, sick, social care, sold, Tories, Tory, Vox Political


Americanised healthcare: It is appropriate that the only appropriate image I could find features dollars instead of pounds - because it is clear that the Tory government is changing the NHS into an Americanised insurance-based service.

Americanised healthcare: It is appropriate that the only appropriate image I could find features dollars instead of pounds – because it is clear that the Tory government is changing the NHS into an Americanised insurance-based service.

Confidential information on NHS patients has been sold to insurance companies who used it in combination with information from credit rating agencies to identify customers and “refine” their premiums – increasing the costs of policies for thousands of customers, despite all the Tory-led government’s assurances to the contrary.

According to the Daily Telegraph, “a major UK insurance company… was able to obtain 13 years of hospital data – covering 47 million patients.

“As a result they recommended an increase in the costs of policies for thousands of customers last year.”

The revelation comes only days after plans to sell the confidential medical information of every NHS patient in England were put on hold amid a public outcry.

The care.data system, also called variously the General Patient Extraction Service (GPES) or the Health and Social Care Information Centre, was dreamed up as a money-spinning device by Jeremy Hunt’s Department of Health.

The aim is that, if you are an NHS patient in England, your GP will be forced to provide your confidential records, showing every medical condition you have ever had and providing intimate details of your current state of health, to a huge national database.

From there, your information may be sold on to private healthcare and pharmaceutical companies for “research”. The government has said the information would be “pseudonymised”, in an attempt to reassure you that you cannot be identified from the information to be provided to outside organisations.

Only last Friday the BBC was reporting that critics of the scheme were “scaremongering”.

The Corporation – which has failed to report the new development – quoted Tory MP George Freeman, founder of Patients4Data, which represents charities and drug companies (and not patients, apparently) as follows: “We cannot let opponents peddling scaremongering myths stop patients benefiting from this quiet revolution of modern medicine.”

And last month, NHS England categorically stated: “No data will be made available for the purposes of selling or administering any kind of insurance.”

Vox Political has made it clear from the outset that this is not true, and in fact it will be entirely possible to trace your medical information back to you. Now we have proof.

NHS England has delayed compiling the new database of English NHS patients until the autumn. You could help sink the scheme altogether, if you don’t want your government – and your NHS – to sell your information into the wrong hands. Just opt out of the data sharing scheme, using a form designed by the medConfidential website.

Make no mistake – the Conservative Party and the Liberal Democrats in Parliament have betrayed you.

They have already sold hospital patients’ information to insurance companies, and there can be no doubt that the intention is to do the same with GPs’ confidential records, with a consequential increase in insurance costs to people across the country.

They are turning your beloved National Health Service into an insurance-based scheme, on the same lines as the vastly more expensive American system.

They have been lying to you.

They intend to profit from selling your information – to companies that intend to profit by using it against you.

Are you going to sit there and let them?

Follow me on Twitter: @MidWalesMike

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Atos ‘death threats’ claim – ‘outrageous’ insult to those its regime has killed

23 Sunday Feb 2014

Posted by Mike Sivier in Benefits, Conservative Party, Cost of living, Democracy, Disability, Employment and Support Allowance, Food Banks, Health, Liberal Democrats, Media, People, Politics, Poverty, Public services, UK

≈ 37 Comments

Tags

A4E, against, anti, assessment, Atos, bedroom tax, benefit, Black Triangle, Brighton, bullies, bully, capability, capita, Centre, Coalition, commercial, confidential, Conservative, contract, cuts, day, death, Democrat, despair, destitute, destitution, disability, disabled, DPAC, eviction, Facebook, food bank, G4S, health, home, Incapacity, independence, insult, intimidation, Joanne Jemmett, kill, Lib Dem, Liberal, London, mental, Mike Sivier, mikesivier, misery, money, national, Newtown, outrageous, payment, people, personal, physical, picket, PIP, politics, poverty, premature, profit, protest, punishment, regime, Serco, squabble, suicide, threat, Tories, Tory, Vox Political, WCA, Weston Super Mare, work


“If this isn’t intimidation, I don’t know what is – it’s a very clear message to anyone: How dare you protest against us and, if you do, we’ll find you fit for work!” Anti-Atos protester Joanne Jemmett with the sign left by Atos workers outside the assessment centre in Weston-Super-Mare on Wednesday (“Fit enough to protest – fit enough to work!”) at the start of this short film documenting the demonstration there.

Watching the stories stack up in the wake of the national day of protest against Atos last Wednesday has been very interesting.

The immediate response was that Atos has approached the government, seeking an early end to its contract. This deal, under which Atos administers the hated Work Capability Assessments to people on incapacity or disability benefits, would have been worth more than £1 billion to the company over a 10-year period.

Allegedly, company employees have been receiving death threats, both during and after the protests. We’ll come back to those shortly.

The Conservative-led Coalition took this development in the way we have come to expect – spitefully. A DWP spokesperson said that the company’s service had declined to an unacceptable level, and that the government was already seeking tenders from other firms for the contract.

This is what happens when bullies squabble.

Atos is the big bully that has just had a shock because the other kids in the playground stood up to it and made it clear they weren’t going to stand for its nonsense any more. We’re told that all bullies are cowards and it appears to be true in this case – Atos went running to the bigger bully (the government) and said it was scared. The government then did what bigger bullies do; it said Atos was rubbish anyway and set about finding someone else to do its dirty work.

Here’s the sticking-point, though – as the BBC identified in its article: “The government was furious with Atos for leaking information it believes to be commercially confidential… If Atos wants to pull out early, some other companies may pay less to take those contracts on than they otherwise would.”

I should clarify that companies don’t actually pay for contracts; they offer to carry out the work at the lowest prices they think are viable, in competition with other firms. The government chooses the company it feels is best-suited to the work. In this situation, it seems likely that the possibility of death threats may put some firms off even applying.

So let’s come back to those threats. A spokesperson for the organisers of Wednesday’s demonstration tells us that pickets took place outside 93 Atos centres, across the UK. Most of these were very small – averaging 30 people or less (I can confirm that in Newtown, Powys, a maximum of 15 people attended at any one time). Brighton and London were bigger, but 12 demos had only one person present.

“That is really funny because, as you have seen, Atos are saying they had to close down all their centres for the day – up and down the country – because of huge hoards of scary, threatening disabled people issuing death threats,” the spokesperson said.

“All demos were peaceful and no trouble or arrests were reported.”

In the spokesperson’s opinion: “Atos have been planning to step down for a long time because they weren’t making enough profit and just used our tiny little demos as an excuse.”

Disabled People Against Cuts (DPAC) and sister group Black Triangle issued a joint statement: “The bizarre exit strategy Atos have developed in identifying apparent physical threats on Facebook despite the growing lists of real deaths caused by the WCA regime is an outrageous insult to all those who have died and all those who have lost family members through this regime.

“It is an insult to those left without their homes, without money and needing to go to food banks.

“It is an insult to every person who has suffered worsening physical and mental health through this inhuman regime.”

The statement also poured water on any government claim that other companies had been put off bidding for the contract:”The alphabet corporations – G4S, A4E, SERCO, CAPITA – are already lining up to take over the multi-million profits and the mantle of the new Grim Reapers. The misery imposed by this Government and the DWP will continue as long as its heinous policies continue.”

I would strongly urge all readers to put their support behind the remainder of the statement, which asserted: “The Work Capability Assessment must also end.

“The reign of terror by this unelected Coalition Government which has awarded itself pay rises and cut taxes for those earning more than £150,000 while piling punishment, poverty, misery and premature death on everyone else in its policies of rich against poor must end.

“Make no mistake – we will continue to demonstrate against ATOS, now delivering the complete failure of PIP in which claims are being delayed by up to a year.

“We will demonstrate against any other company that takes over the WCA contract.

“We will continue to demand the immediate removal of the WCA, and the removal of this Government.”

Hear, hear.

In my article on the Bedroom Tax evictions taking place in my home town (yesterday) I made it clear that too few people are bothering to pay attention to the evils of the Conservative-Liberal Democrat Coalition government. That article received a huge response, garnering almost four times the readership of other recent posts within just 24 hours.

The situation described in this article is much worse – people aren’t being evicted from their homes; they are being forced off of the benefits that have kept them alive, pushed – by the government! – towards destitution, despair and death through either suicide or a failure of their health that their Atos assessment results deny should ever take place.

Today’s article should have more readers, after the success of yesterday’s – but we’ll have to see, shan’t we? If fewer people read it, we’ll know that they all just looked up for a moment, thought, “Oh, that’s interesting,” and went back to whatever distraction keeps them happy in the face of impending government-sponsored pain.

Any attempt to inform the public will fail if the public stops paying attention.

Let’s keep it focused where it belongs.

Follow me on Twitter: @MidWalesMike

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Stalled – the plan to share NHS patients’ confidential information with big business

19 Wednesday Feb 2014

Posted by Mike Sivier in Conservative Party, Corruption, Health, Media, People, Politics, UK

≈ 10 Comments

Tags

approved organisation, care.data, choice, confidential, database, fail, failure, General Patient Extraction Service, government, GPES, health, hold, HSCIC, human, identified, identify, identity, Independent, Information Centre, informed, Jeremy Hunt, medConfidential, medical, Mike Sivier, mikesivier, NHS, NHS England, outcry, patient, people, Phil Booth, politics, private, pseudonymise, public, publicise, quality, record, Research, screening, secretary, sell, service, sick, social care, sold, stall, Vox Political


Freudian slip: The BBC's article on the care.data delay was accompanied by this picture of a hand drawing on a diagram of a pair of breasts. Is this a tacit implication that the Department of Health has boobed? (Sorry, ladies) [Image: BBC]

Freudian slip: The BBC’s article on the care.data delay was accompanied by this picture of a hand drawing on a diagram of a pair of breasts. Is this a tacit implication that the Department of Health has boobed? (Sorry, ladies) [Image: BBC]

A plan to sell the confidential medical information of every NHS patient in England has been put on hold after it caused a public outcry.

The care.data system, also called variously the General Patient Extraction Service (GPES) or the Health and Social Care Information Centre, was dreamed up as a money-spinning device by Jeremy Hunt’s Department of Health.

The aim is that, if you are an NHS patient in England, your GP will be forced to provide your confidential records, showing every medical condition you have ever had and providing intimate details of your current state of health, to a huge national database.

From there, your information may be sold on to private healthcare and pharmaceutical companies for “research”. A new proposal backed by NHS England (a body set up largely to support the increasing privatisation of the NHS, if my information is correct) would give non-NHS bodies including private companies the right to ask for access to the data.

The government has said the information would be “pseudonymised”, in an attempt to reassure you that you cannot be identified from the information to be provided to outside organisations. This is not true, and in fact it will be entirely possible to trace your medical information back to you.

The government claims the information will help experts assess diseases, examine the effects of new drugs and identify infection outbreaks, while also monitoring the performance of the NHS.

In fact, it seems far more likely that this is a widespread invasion of privacy, with the information likely to be used (for example) to sell you health insurance that you should not need.

We are told that NHS England organised a mass mailing to every household in England, explaining its version of what the planned system will do – but a BBC poll of 860 people last week found that fewer than one-third of them could recall receiving it.

Concern that people are likely to end up allowing their information to go into commercial hands without ever knowing about it has led to the scheme being halted – for the time being.

NHS England has accepted that its communications campaign must be “improved”, although we do not yet know how. A propaganda campaign on TV and radio seems likely.

Every NHS patient in England has the right to opt out of the data sharing scheme, and many have already chosen to do so. You can do it right now, using a form designed by the medConfidential website.

While NHS England and the Department of Health will continue trying to justify this scheme, there is no justification for selling your private information to commercial organisations.

It is to be hoped that this six-month pause will end with the abandonment of the scheme.

If the organisations that want the information genuinely intend to use it for humanitarian concerns, it would be fully anonymised and they would not be buying it.

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Are you happy for big business to have your confidential medical records?

21 Tuesday Jan 2014

Posted by Mike Sivier in Conservative Party, Health, People, Politics, UK

≈ 23 Comments

Tags

approved organisation, care.data, choice, confidential, database, fail, failure, General Patient Extraction Service, government, GPES, health, HSCIC, human, identified, identify, identity, Independent, Information Centre, informed, Jeremy Hunt, medConfidential, medical, Mike Sivier, mikesivier, NHS, patient, people, Phil Booth, politics, private, pseudonymise, publicise, quality, record, Research, screening, secretary, sell, service, sick, social care, sold, Vox Political


n4s_nhs1

Do you live in England? Are you an NHS patient? Have you realised that your Conservative-led Coalition government is selling your medical records to private healthcare and pharmaceutical companies? Do you know that these ‘anonymised’ records are in fact nothing of the sort, and anyone buying your details will be able to identify you?

Do you want to do something about it? It isn’t too late.

Vox Political warned last September that Health Secretary Jeremy Hunt is planning to sell records to “approved” private companies and also universities – that’s sell, mark you, to make money for the government.

The system was called the General Patient Extraction Service (GPES) – although exactly who it serves is entirely up for debate. It seems to have metamorphosed into the Health and Social Care Information Centre by now, but the purpose remains the same. You may also see it described as the care.data scheme.

Hunt wants us to believe that the information will be valuable for medical research and screening for common diseases.

In fact, the information could be used by private health companies as evidence of failures by the National Health Service, and could help those companies undercut NHS bids to continue running those services – this would accelerate the privatisation that nobody wanted.

This week, The Independent reminded us all that the system that will sell off your information will go live later this year.

The article warned: “Companies like Bupa or Virgin that already hold data on UK patients may be able to use the new anonymous data available from the centre to precisely identify where it has come from, according to campaigners.

Phil Booth, co-ordinator at patient pressure group medConfidential, said: “The scheme is deliberately designed so that ‘pseudonymised’ data – information that can be re-identified by anyone who already holds information about you – can be passed on to ‘customers’ of the information centre, with no independent scrutiny and without even notifying patients. It’s a disaster just waiting to happen.”

The information for sale to profit-making firms will contain NHS numbers, date of birth, postcode, ethnicity and gender.

Patients can opt out of the system by contacting their family doctor, but medConfidential has designed a form to make it easier.

On its ‘How to opt out’ page, the organisation writes: “Under changes to legislation, your GP can now be required to upload personal and identifiable information from the medical record of every patient in England to central servers at the Health and Social Care Information Centre. Once this information leaves your GP practice, your doctor will no longer be in control of what data is passed on or to whom.

“This information will include diagnoses, investigations, treatments and referrals as well as other things you may have shared with your doctor including your weight, alcohol consumption, smoking and family history. Each piece of information will be identifiable as it will be uploaded with your NHS number, date of birth, post code, gender and ethnicity.

“NHS England – the body now in charge of commissioning primary care services across England – will manage and use the information extracted by the Health and Social Care Information Centre for a range of purposes, none of which are to do with your direct medical care. Though the official leaflets talk a great deal about research, these ‘secondary uses’ for which your data may be used include patient-level tracking and monitoring, audit, business planning and contract management.

“In September 2013, NHS England applied to pass on your information in a form it admits “could be considered identifiable if published” to a whole range of organisations that include – but are not limited to – research bodies, universities, think tanks, “information intermediaries”, charities and private companies.

“Though you may be told that any data passed on will be ‘anonymised’, no guarantees can be given as to future re-identification – indeed information is to be treated so that it can be linked to other data at patient level – and NHS England has already been given legal exemptions to pass identifiable data across a range of regional processing centres, local area teams and commissioning bodies that came into force on April 1st 2013. The Health and Social Care Information Centre already provides access to patient data, some in identifiable form, to a range of ‘customers’ outside the NHS, including private companies.”

The opt-out form is downloadable from the medConfidential web page, along with a form letter in various formats, allowing patients to opt out themselves, their children and any adults for whom they are responsible.

This is a gross abuse of patient confidentiality for the purpose of commercial gain.

Don’t let it happen to you.

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Dilemma for private bosses as Labour unveils transparency plan for public service work

28 Monday Oct 2013

Posted by Mike Sivier in Business, Corruption, Labour Party, Politics, Public services, UK

≈ 7 Comments

Tags

10-minute rule, advantage, advisor, avoid, bribe, charity, Coalition, commercial, companies, company, confidential, Conservative, corrupt, Democrat, firm, FOI, Freedom of Information, government, Grahame Morris, healthcare, Labour, Lib Dem, Liberal, Mike Sivier, mikesivier, National Health Service, NHS, open, Parliament, policy, politics, private, provider, public, revolving doors, Sadiq Khan, secrecy, sector, sell, service, spy, state, tax, transparency, transparent, undercut, unfair, veil, Vox Political


An end to the corporate backhander? [Picture: This Is Money}

An end to the corporate backhander? [Picture: This Is Money}

A Labour government would make private companies who provide services at the taxpayers’ expense obey public sector transparency rules, it has been revealed.

The change means firms and charities that sell services to the state – for example, all the private companies now working in the NHS – would lose their right to commercial confidentiality.

The Freedom of Information Act would be extended to cover them and they would have to reveal their commercial secrets if a FoI request required them to do so.

If enacted, this is likely to be more effective in creating transparency of lobbying than the Parliamentary Bill of the same name that is currently working its way through Westminster.

The policy was revealed in a Sunday Times article which is paywall protected. Labour has yet to release an announcement on its website.

The article quotes shadow justice secretary Sadiq Khan, who said: “More and more of our public services are being delivered by private companies and charities, out of reach of freedom of information. We must demand the same openness from them as we expect from government. It’s not on to let these organisations hide behind a veil of secrecy.”

Bravo.

The new policy comes after a 10-minute rule motion by Labour’s Grahame Morris began its journey through Parliament earlier this month. Such motions rarely get very far because the government of the day usually opposes them in the later stages and there is often too little time to complete the debate.

But these bills stimulate publicity for their cause, and it seems clear that the Labour leadership has taken this particular cause on board.

So it should – concerns are high that unfair advantages are being handed to, for example, the private healthcare companies, who are then able to hide the facts behind the veil of commercial confidentiality. Why should they be allowed to do this when they are providing a public service, funded by the citizens of the UK?

Existing NHS operators do not have the advantage of commercial confidentiality and must provide details of the way they operate if a FoI request is submitted to them. This makes them vulnerable during the bidding process for NHS contracts, as private operators can ask about the current providers’ operations and then undercut them to get the work.

Then there’s the so-called “revolving doors” practice, in which government advisors move to lucrative contracts in the private sector, often after providing advice that changes government policy in favour of their new employer. Mr Morris’s motion noted that “at least five former advisors to the Prime Minister and the Chancellor of the Exchequer are now working for lobbying firms with private healthcare clients”.

This is a corrupt practice – the firms gain an unfair advantage because they have, if you like, a spy in government manipulating affairs to their advantage. Nothing is done about this at the moment, nor will the Labour proposal change that situation – but we will all be able to see who the spies are.

It would probably be advisable for a future Labour government to put powers in place to reverse any change in the law due to corrupt advice intended to engineer a commercial advantage to a private company. Restricting the movement of government employees to other jobs would be problematic, but if it is known that any changes they effect will be reversed after such a move, then the exercise would become pointless.

Companies would not be able to pay a person to influence the government while they remained in the taxpayers’ employ, as this would be a clear case of bribery and corruption.

A previous VP article on this subject mentioned the idea of the level playing field – and Labour is to be praised for producing policies intended to restore that principle to government in the face of Conservative and Liberal Democrat efforts to skew the field in favour of their corporate chums.

And the corporates themselves? Well, their bosses are likely to be furious and it’s possible that all kinds of threats will come in Labour’s direction.

That’s fine. A Labour government can take any such complaint in stride by launching a programme to revise government tax strategy with regard to corporates, and bring any complaining company to the top of the list.

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Hands off my medical records, Jeremy!*

25 Wednesday Sep 2013

Posted by Mike Sivier in Conservative Party, Health, People, Politics, UK

≈ 25 Comments

Tags

approved organisation, bma, British Medical Association, care.data, choice, confidential, Daily Mail, database, disease, duty, epidemic, experiment, fail, failure, General Patient Extraction Service, government, GPES, health, human, identified, identify, identity, informed, Jeremy Hunt, LMC, local medical committee, medical, Mike Sivier, mikesivier, NHS, patient, people, politics, private, publicise, quality, record, Research, screening, secretary, sell, service, sick, sold, Vox Political


The two-fingered salute: Jeremy *unt displays his high regard for the NHS patients whose details he wants to steal and sell to private business.

The two-fingered salute: Jeremy *unt displays his high regard for the NHS patients whose details he wants to steal and sell to private business.

Conservatives. They think they own everything – including your medical records.

If you live in England, Jeremy ‘The Misprint’ *unt wants your doctor to send your confidential patient record to a national database, from which it will be sold on – sold on to make money for him, mark you – to “approved” private companies and also universities.

The system is called the General Patient Extraction Service (GPES) – although exactly who it serves is entirely up for debate. You may also see it described as the care.data scheme.

He thinks this gross abuse of patient confidentiality is a good idea. But then, he’s a Tory and therefore thinks he has a God-given right to take anything, from anyone, if they have less filthy lucre than himself.

According to the Daily Mail – and you know the Tories have lost the plot when even the Heil weighs in against them – the *unt wants us to believe that the information will be valuable for medical research and screening for common diseases.

And an NHS England spokesman told the paper, “The programme will provide vital information to approved organisations about the quality of health services.”

Oh really?

So in fact this information could be used by private health companies as evidence of failures by the National, publicly-funded, service, yes?

How would it help in screening for common diseases? This information becomes freely available without any data having to be sold – how else would we know when an epidemic breaks out?

And how is this valuable for medical research – beyond the possibility that the now-infamous ‘job offer’ for people to take part in human medical experimentation may be targeted at particular individuals, according to medical records that they thought were only available to their own, trusted GP?

Doctors say Mr *unt and NHS England have failed in their duty to publicise the plan in a proper and reasonable way, that patients are not getting an “informed” choice about the matter, and that patients could be identified from the data with any information other than that on common conditions – which, we’ve already established, becomes public knowledge anyway.

Some Local Medical Committees (LMCs) are already discussing whether to opt out of the system – and this blog would urge all the others to do the same.

If you are concerned about this gross invasion of your privacy, you can contact your own LMC and request that they opt out. Contact details can be found on the British Medical Association’s website here.

*In fact he won’t be able to get his filthy hands on them anyway because I live in Wales. The title is for effect.

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Phone hacking, Leveson and the AC/DC affair

30 Thursday Aug 2012

Posted by Mike Sivier in Business, Conservative Party, Media, People, Police, Politics, UK

≈ Comments Off on Phone hacking, Leveson and the AC/DC affair

Tags

"loading a gun", AC/DC, affair, Andy Coulson, BBC, Brecon and Radnor Express, celebrities, celebrity, Chris Blackhurst, Coalition, Communications Director, confidential, Conservative, Conservatives, correspondence, criminal, David Cameron, Director of Communications, Downing Street, government, investigation, Leveson, Leveson Inquiry, Levi Bellfield, Lord Justice, Mike Sivier, mikesivier, Millie Dowler, News of the World, phone hacking, police, press office, Rebekah Brooks, Rebekah Wade, scandal, The Independent, The New York Times, Tories, Tory


AC/DC: Was Andy Coulson guilty of criminally monitoring the activities of private individuals, and was David Cameron guilty of irresponsible misjudgement by allowing him into Downing Street? These are the important questions behind the Leveson Inquiry. There should be no concern about hurting another editor’s feelings.

Certain people seem to be forgetting that the Leveson Inquiry into the Culture, Practice and Ethics of the Press was partly prompted by a newspaper’s interference in criminal investigations after a schoolgirl was murdered.

It is understood that reporters from the News of the World (I don’t know how many of them did it) hacked into Millie Dowler’s mobile phone, listened to voice messages left on it, and then deleted them, allowing new messages to be left and illicitly monitored, and leading her parents to believe that the teenager, who had been killed by Levi Bellfield, was still alive. This act also hindered the police investigation into what had happened.

Rebekah Brooks, a close friend of Conservative MP David Cameron – who later became leader of the Tories, and Prime Minister in 2010 – was editor of that newspaper at the time. The New York Times alleged that, if the allegations were true, then it was possible Mrs Brooks knew about the hacking and allowed it.

I am a newspaper reporter – and was editor of The Brecon and Radnor Express for a while before running my own online news business for a few years. I know the scale of our respective operations was vastly different, but I can promise that I always knew how my reporters were getting their stories. If I didn’t know, I asked.

Mrs Brooks was followed as editor of the News of the World by one Andy Coulson, who went on to become Conservative Party Communications Director and then Director of Communications for the Prime Minister (when David Cameron assumed that role in 2010). He had taken up the Conservative Party position after resigning from the newspaper over the phone hacking affair. He had been subjected to allegations that he was aware his reporters were hacking into the telephones of private individuals, including celebrities.

The Andy Coulson/David Cameron (or AC/DC, as I propose to call it from now on) relationship is the important issue here.

The main question behind the Leveson Inquiry has always been this: Did David Cameron allow a criminal, who used illegal methods to monitor the activities of others, into the heart of the British government?

This would have been a colossal error of judgement – possibly an unforgivable one.

The editor of The Independent seems to have forgotten that this is what it’s all about. Responding to a letter from the Inquiry, Chris Blackhurst claimed that Lord Justice Leveson was “loading a gun” that he was preparing to fire at the newspaper industry.

He told the BBC it was “a point by point demolition of the industry”, describing it as a “diatribe” raising criticisms that did not bear any relation to practices at his “end of the market”.

This is a man who badly needs to get over himself. Serious questions have been raised about the behaviour of our national newspapers, and if the Inquiry has found that they are justified, then they need to be addressed.

He does not know the full extent of the Inquiry’s findings. The letter he received is a standard part of inquiry procedures and gives notice of possible criticism, offering those concerned a chance to respond before a conclusion is reached. They are one-sided because positive findings do not necessitate a warning.

And we should not gloss over the fact that Mr Blackhurst has broken the rules by making the complaint. The letter he received was confidential and those who receive such correspondence are obliged to keep them that way and not discuss them openly.

By whining about it, Mr Blackhurst has made Leveson’s point for him.

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