The end of patient confidentiality as NHS information is sold to insurers

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Americanised healthcare: It is appropriate that the only appropriate image I could find features dollars instead of pounds – because it is clear that the Tory government is changing the NHS into an Americanised insurance-based service.

Confidential information on NHS patients has been sold to insurance companies who used it in combination with information from credit rating agencies to identify customers and “refine” their premiums – increasing the costs of policies for thousands of customers, despite all the Tory-led government’s assurances to the contrary.

According to the Daily Telegraph, “a major UK insurance company… was able to obtain 13 years of hospital data – covering 47 million patients.

“As a result they recommended an increase in the costs of policies for thousands of customers last year.”

The revelation comes only days after plans to sell the confidential medical information of every NHS patient in England were put on hold amid a public outcry.

The care.data system, also called variously the General Patient Extraction Service (GPES) or the Health and Social Care Information Centre, was dreamed up as a money-spinning device by Jeremy Hunt’s Department of Health.

The aim is that, if you are an NHS patient in England, your GP will be forced to provide your confidential records, showing every medical condition you have ever had and providing intimate details of your current state of health, to a huge national database.

From there, your information may be sold on to private healthcare and pharmaceutical companies for “research”. The government has said the information would be “pseudonymised”, in an attempt to reassure you that you cannot be identified from the information to be provided to outside organisations.

Only last Friday the BBC was reporting that critics of the scheme were “scaremongering”.

The Corporation – which has failed to report the new development – quoted Tory MP George Freeman, founder of Patients4Data, which represents charities and drug companies (and not patients, apparently) as follows: “We cannot let opponents peddling scaremongering myths stop patients benefiting from this quiet revolution of modern medicine.”

And last month, NHS England categorically stated: “No data will be made available for the purposes of selling or administering any kind of insurance.”

Vox Political has made it clear from the outset that this is not true, and in fact it will be entirely possible to trace your medical information back to you. Now we have proof.

NHS England has delayed compiling the new database of English NHS patients until the autumn. You could help sink the scheme altogether, if you don’t want your government – and your NHS – to sell your information into the wrong hands. Just opt out of the data sharing scheme, using a form designed by the medConfidential website.

Make no mistake – the Conservative Party and the Liberal Democrats in Parliament have betrayed you.

They have already sold hospital patients’ information to insurance companies, and there can be no doubt that the intention is to do the same with GPs’ confidential records, with a consequential increase in insurance costs to people across the country.

They are turning your beloved National Health Service into an insurance-based scheme, on the same lines as the vastly more expensive American system.

They have been lying to you.

They intend to profit from selling your information – to companies that intend to profit by using it against you.

Are you going to sit there and let them?

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Stalled – the plan to share NHS patients’ confidential information with big business

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Freudian slip: The BBC’s article on the care.data delay was accompanied by this picture of a hand drawing on a diagram of a pair of breasts. Is this a tacit implication that the Department of Health has boobed? (Sorry, ladies) [Image: BBC]

A plan to sell the confidential medical information of every NHS patient in England has been put on hold after it caused a public outcry.

The care.data system, also called variously the General Patient Extraction Service (GPES) or the Health and Social Care Information Centre, was dreamed up as a money-spinning device by Jeremy Hunt’s Department of Health.

The aim is that, if you are an NHS patient in England, your GP will be forced to provide your confidential records, showing every medical condition you have ever had and providing intimate details of your current state of health, to a huge national database.

From there, your information may be sold on to private healthcare and pharmaceutical companies for “research”. A new proposal backed by NHS England (a body set up largely to support the increasing privatisation of the NHS, if my information is correct) would give non-NHS bodies including private companies the right to ask for access to the data.

The government has said the information would be “pseudonymised”, in an attempt to reassure you that you cannot be identified from the information to be provided to outside organisations. This is not true, and in fact it will be entirely possible to trace your medical information back to you.

The government claims the information will help experts assess diseases, examine the effects of new drugs and identify infection outbreaks, while also monitoring the performance of the NHS.

In fact, it seems far more likely that this is a widespread invasion of privacy, with the information likely to be used (for example) to sell you health insurance that you should not need.

We are told that NHS England organised a mass mailing to every household in England, explaining its version of what the planned system will do – but a BBC poll of 860 people last week found that fewer than one-third of them could recall receiving it.

Concern that people are likely to end up allowing their information to go into commercial hands without ever knowing about it has led to the scheme being halted – for the time being.

NHS England has accepted that its communications campaign must be “improved”, although we do not yet know how. A propaganda campaign on TV and radio seems likely.

Every NHS patient in England has the right to opt out of the data sharing scheme, and many have already chosen to do so. You can do it right now, using a form designed by the medConfidential website.

While NHS England and the Department of Health will continue trying to justify this scheme, there is no justification for selling your private information to commercial organisations.

It is to be hoped that this six-month pause will end with the abandonment of the scheme.

If the organisations that want the information genuinely intend to use it for humanitarian concerns, it would be fully anonymised and they would not be buying it.

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Are you happy for big business to have your confidential medical records?

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approved organisation, care.data, choice, confidential, database, fail, failure, General Patient Extraction Service, government, GPES, health, HSCIC, human, identified, identify, identity, Independent, Information Centre, informed, Jeremy Hunt, medConfidential, medical, Mike Sivier, mikesivier, NHS, patient, people, Phil Booth, politics, private, pseudonymise, publicise, quality, record, Research, screening, secretary, sell, service, sick, social care, sold, Vox Political

Do you live in England? Are you an NHS patient? Have you realised that your Conservative-led Coalition government is selling your medical records to private healthcare and pharmaceutical companies? Do you know that these ‘anonymised’ records are in fact nothing of the sort, and anyone buying your details will be able to identify you?

Do you want to do something about it? It isn’t too late.

Vox Political warned last September that Health Secretary Jeremy Hunt is planning to sell records to “approved” private companies and also universities – that’s sell, mark you, to make money for the government.

The system was called the General Patient Extraction Service (GPES) – although exactly who it serves is entirely up for debate. It seems to have metamorphosed into the Health and Social Care Information Centre by now, but the purpose remains the same. You may also see it described as the care.data scheme.

Hunt wants us to believe that the information will be valuable for medical research and screening for common diseases.

In fact, the information could be used by private health companies as evidence of failures by the National Health Service, and could help those companies undercut NHS bids to continue running those services – this would accelerate the privatisation that nobody wanted.

This week, The Independent reminded us all that the system that will sell off your information will go live later this year.

The article warned: “Companies like Bupa or Virgin that already hold data on UK patients may be able to use the new anonymous data available from the centre to precisely identify where it has come from, according to campaigners.

Phil Booth, co-ordinator at patient pressure group medConfidential, said: “The scheme is deliberately designed so that ‘pseudonymised’ data – information that can be re-identified by anyone who already holds information about you – can be passed on to ‘customers’ of the information centre, with no independent scrutiny and without even notifying patients. It’s a disaster just waiting to happen.”

The information for sale to profit-making firms will contain NHS numbers, date of birth, postcode, ethnicity and gender.

Patients can opt out of the system by contacting their family doctor, but medConfidential has designed a form to make it easier.

On its ‘How to opt out’ page, the organisation writes: “Under changes to legislation, your GP can now be required to upload personal and identifiable information from the medical record of every patient in England to central servers at the Health and Social Care Information Centre. Once this information leaves your GP practice, your doctor will no longer be in control of what data is passed on or to whom.

“This information will include diagnoses, investigations, treatments and referrals as well as other things you may have shared with your doctor including your weight, alcohol consumption, smoking and family history. Each piece of information will be identifiable as it will be uploaded with your NHS number, date of birth, post code, gender and ethnicity.

“NHS England – the body now in charge of commissioning primary care services across England – will manage and use the information extracted by the Health and Social Care Information Centre for a range of purposes, none of which are to do with your direct medical care. Though the official leaflets talk a great deal about research, these ‘secondary uses’ for which your data may be used include patient-level tracking and monitoring, audit, business planning and contract management.

“In September 2013, NHS England applied to pass on your information in a form it admits “could be considered identifiable if published” to a whole range of organisations that include – but are not limited to – research bodies, universities, think tanks, “information intermediaries”, charities and private companies.

“Though you may be told that any data passed on will be ‘anonymised’, no guarantees can be given as to future re-identification – indeed information is to be treated so that it can be linked to other data at patient level – and NHS England has already been given legal exemptions to pass identifiable data across a range of regional processing centres, local area teams and commissioning bodies that came into force on April 1st 2013. The Health and Social Care Information Centre already provides access to patient data, some in identifiable form, to a range of ‘customers’ outside the NHS, including private companies.”

The opt-out form is downloadable from the medConfidential web page, along with a form letter in various formats, allowing patients to opt out themselves, their children and any adults for whom they are responsible.

This is a gross abuse of patient confidentiality for the purpose of commercial gain.

Don’t let it happen to you.

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Is Jeremy Hunt trying to fool us with the same con trick, all over again?

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It seems that Jeremy Misprint Hunt is trying to pretend that his planned law making it easier to close good hospitals to prop up bad ones (and boost private health firms in the process) is happening because “Conservatives genuinely care about the NHS”.

Writing in The Guardian, he tells us that Clause 118 of the Care Bill currently on its way through Parliament – the so-called Hospital Closure Clause, “is necessary because we need the power to turn around failing hospitals quickly and – in extremis – put them into administration before people are harmed or die unnecessarily.

“The process has to happen quickly, because when a hospital is failing lives can be put at risk. That is why it matters so much – and why, in opposing it, Labour are voting to entrench the failures they failed to tackle.”

For information, Clause 118 was included in the Bill after Mr Hunt lost a legal battle to close services at the successful and financially solvent Lewisham Hospital in order to shore up the finances of the neighbouring South London Healthcare Trust, which was losing more than £1 million every week after commissioning new buildings under the Private Finance initiative.

The private firms that funded this work were apparently charging huge amounts of interest on it, meaning that SLHT would never be able to clear its debt.

PFI was introduced by the Conservative government of 1979-97 and, sadly, continued by the Labour government that followed it.

It seems likely that it will contribute to the absorption of many NHS trusts by the private sector, as the effects of the Health and Social Care Act 2012 take hold.

Clause 118 means the Health Secretary will be able to close successful local hospitals in England on the pretext of helping neighbouring trusts that are failing – without full and proper consultation with patients and the public, or even agreement from the (in name alone) GP-led Clinical Commissioning Groups.

The resulting, merged, organisation could then be handed over to private firms who bid to run the service at a price that is acceptable to the government.

So it seems that this is a plan to speed up the process of privatisation, rather than anything to do with caring about the NHS.

It seems to me that Mr Hunt is trying to lull the public into false security by claiming the NHS is safe, in exactly the same way his forerunner as Health Secretary, Andrew Lansley, provided assurances before Parliament passed his nefarious Health and Social Care Act.

Mr Lansley said his law would increase the range of choice available to patients (it doesn’t; in fact, it increases the ability of service providers to choose which patients they treat, on the basis of cost rather than care); he said GPs would be able to commission the services they need for their patients (in practice, they don’t; the running of the new Clinical Commissioning Groups has been handed over primarily to private healthcare consultants, many of which are arms of private healthcare providers, creating a conflict of interest that is conspicuously never mentioned); and he said that CCGs would be able to choose who provides services on the basis of quality (they can’t; if they restrict any service to a single provider, they risk legal action from private healthcare firms on the grounds that they are breaching competition rules).

Mr Lansley lied about all those matters; it seems Mr Hunt is lying about this one.

Or am I mistaken?

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Three letters: F-O-X

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Has anybody examined the verbal vandalism attempted by former Defence Secretary Liam Fox on the National Health Service this week?

Mr Fox’s known financial interests include receiving £5,000 to run his private office in October 2012 from investment company IPGL Ltd, who purchased healthcare pharma company Cyprotex.

That didn’t stop him from trying to starve what’s left of the publicly-owned part of our health service of the ever-dwindling portion of taxpayers’ cash earmarked for it.

He demanded that NHS funding should not be ring-fenced after the 2015 general election, saying its performance does not justify the favour.

He told The Times: “I think we’ve tested to destruction the idea that simply throwing lots more money at the health service will make it better.

“The increase over the last decade has been phenomenal and yet a lot of our health indicators lag behind other countries, particular things like stroke outcome or a lot of cancer outcomes.

“We’ve become obsessed with throughput and not outcomes and that has been hugely to the detriment of the patients in our system.

“If you treat the National Health Service itself as being the important entity, and not the patients, then you’re on a hiding to nothing.”

There’s a lot of material in there that isn’t worth the time it took to cut and paste it (from the Guardian article) – but it needs to be addressed because there will be people in this country who believe it.

Firstly: Ring-fencing the budget does not mean it has remained at pre-2010 heights. In fact all parts of the NHS have had to cut budgets by four per cent, year on year, in order to meet the so-called ‘Nicholson challenge’ to cut £20 billion from the overall budget by 2015. In addition, while David Cameron has insisted that his government will have increased that budget by £12.7 billion by 2015, figures up to 2013 show a decrease in funding.

They haven’t been “throwing lots more money at the health service”; they’ve been starving it. This came after a decade of, yes, record investment – which resulted in record levels of public satisfaction as it met ambitious targets to cut waiting times and improve patient care.

It was only after the Conservative-led Coalition government came into office that NHS providers began to be cut and squeezed into downsizing, mergers, centralisation and closures. The aim is to reduce the NHS in England to a very few short-staffed, demoralised and overloaded central units, covering only those services deemed unprofitable by private sector providers – including the company that gave Mr Fox his five grand.

He’s not alone – 78 per cent of his fellows in the Parliamentary Conservative Party, including Prime Minister David Cameron and Andrew Lansley, the former Health Secretary who pushed through the unwanted legislation that made this possible, also have financial or vested interests in private healthcare.

You’ll have noticed that Mr Fox did not declare that he had received money from a company associated with private healthcare when he made his comments. The fact is that his fellow Tories, when discussing the then-Health and Social Care Bill, didn’t declare theirs either.

Since the Bill became law, it seems MPs have been falling over themselves to talk the NHS into the grave. But consider this: They all have a financial interest in doing so. If they succeed in their plan to turn over taxpayers’ money to private firms and let the public service wither away, then they are likely to receive dividends from the various companies in which they are involved.

This is known as ‘obtaining a pecuniary advantage by deception’ or, more commonly, fraud.

Mr Fox already had to resign his cabinet position because of an inappropriate business relationship.

Now he is making the same mistake again – and risking more than his reputation.

(Much more information on the Tory-led privatisation of the NHS is available in NHS SOS, edited by Jacky Davis and Raymond Tallis and published by Oneworld. To find out how you can work to reverse the damage being done to the most cherished organisation in the UK, please visit www.keepournhspublic.com and www.nhscampaign.org.uk)

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Hands off my medical records, Jeremy!*

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The two-fingered salute: Jeremy *unt displays his high regard for the NHS patients whose details he wants to steal and sell to private business.

Conservatives. They think they own everything – including your medical records.

If you live in England, Jeremy ‘The Misprint’ *unt wants your doctor to send your confidential patient record to a national database, from which it will be sold on – sold on to make money for him, mark you – to “approved” private companies and also universities.

The system is called the General Patient Extraction Service (GPES) – although exactly who it serves is entirely up for debate. You may also see it described as the care.data scheme.

He thinks this gross abuse of patient confidentiality is a good idea. But then, he’s a Tory and therefore thinks he has a God-given right to take anything, from anyone, if they have less filthy lucre than himself.

According to the Daily Mail – and you know the Tories have lost the plot when even the Heil weighs in against them – the *unt wants us to believe that the information will be valuable for medical research and screening for common diseases.

And an NHS England spokesman told the paper, “The programme will provide vital information to approved organisations about the quality of health services.”

Oh really?

So in fact this information could be used by private health companies as evidence of failures by the National, publicly-funded, service, yes?

How would it help in screening for common diseases? This information becomes freely available without any data having to be sold – how else would we know when an epidemic breaks out?

And how is this valuable for medical research – beyond the possibility that the now-infamous ‘job offer’ for people to take part in human medical experimentation may be targeted at particular individuals, according to medical records that they thought were only available to their own, trusted GP?

Doctors say Mr *unt and NHS England have failed in their duty to publicise the plan in a proper and reasonable way, that patients are not getting an “informed” choice about the matter, and that patients could be identified from the data with any information other than that on common conditions – which, we’ve already established, becomes public knowledge anyway.

Some Local Medical Committees (LMCs) are already discussing whether to opt out of the system – and this blog would urge all the others to do the same.

If you are concerned about this gross invasion of your privacy, you can contact your own LMC and request that they opt out. Contact details can be found on the British Medical Association’s website here.

*In fact he won’t be able to get his filthy hands on them anyway because I live in Wales. The title is for effect.

Lunatics in charge of the asylum – the only way the Bedroom Tax makes sense

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We are living through a time when it is very popular to criticise government – of all colours and political persuasions – for failing to live up to its promises. This is very unfair.

Seriously, it is!

So let us pause for a moment and give the praise that is due to a policy of the Thatcher era that may in fact be celebrating its 30th anniversary this year: Care in the Community.

At the time, this policy of emptying out mental hospitals, putting their patients on the streets to fend for themselves in the hope that there would be an increase in local care, was pilloried by all and sundry as an abandonment of the nation’s duty of care.

It certainly seemed a dangerous move at the time – especially for schoolchildren who had to navigate city streets that were suddenly filled with ill-dressed and dirty men and women with a predilection for shouting foul oaths at the empty air ahead of them, presumably in the belief that it was a person.

But hindsight is a wonderful thing, and it seems that, not only did these ladies and gentlemen in fact benefit from care in the community, some of them responded so well that they were able to return to normal working life, join political parties and become members of the Coalition government.

This is the only workable explanation for the State Underoccupation Charge, or Bedroom Tax, as it is more correctly known.

The only way it can make sense to anybody is if they have a mentality that is seriously skewed.

The problem, according to the government, is that huge numbers of people are either on the waiting list to get into some form of social housing (council or housing association accommodation), and huge numbers already in such accommodation are overcrowded. This, it is alleged, is because too many people are sitting in homes that are larger than they need.

The solution that has been put forward is to find a way to make these “under-occupiers” vacate their homes and go and live in spaces that are more appropriate to their needs.

The government has decided that the correct way to do this is to apply the stick, rather than the carrot, and deprive people in social housing of set amounts of benefit for every room that is deemed to be more than they need. The definition of such rooms is arbitrary and it is understood that dining rooms are being defined as bedrooms in order to “encourage” people to move out.

Worse than this is the fact that the people who are likely to be dispossessed of their homes actually have nowhere to move to.

One would imagine that a government wanting people in social housing to move to more appropriate accommodation would take the precaution of ensuring that such accommodation was available, in the form of one- or two-bedroom social housing provision, before “encouraging” anybody to move anywhere. This has not happened.

Instead, people are expected to move into privately-rented accommodation, which is known to be both more expensive and less suitable for their needs.

This is madness – and that is why we should consider those who have devised the scheme to have been mentally ill at some previous point in their lives, if not at the present time.

There is, however, a rational explanation for the Bedroom Tax. But it cannot take the official line as its raison d’etre.

No; the reason for the Bedroom Tax is that the Government of Millionaires believes that people in social housing – people who are, by the government’s own definition, among the poorest in the UK – have too much money.

Ministers want these people to be drained of their cash. How to achieve this? Charge them for “extra” bedrooms, or make sure they move into private sector accommodation where they will receive no more Housing Benefit but will have to pay more in rent.

This is a plan for the impoverishment of the very poor.

That is the only sensible explanation of the government’s intransigence in the face of the avalanche of news stories about those who will be disadvantaged by it, including today’s in The Guardian, which states that 150,000 single parents will become poorer as a result of the Bedroom Tax.

And while people on Disability Living Allowance may receive part of a £30 million fund, targeted towards those who have modified their homes, the amount available is £100 million short of what is needed.

The Department for Work and Pensions press office, again called into bat because government ministers are a gang of craven cowards who won’t face up to their shortcomings, said: “We need to ensure a better use of social housing when over a quarter of a million tenants are living in overcrowded homes and two million are on housing waiting lists.”

When the choice is between impoverishment at the hands of the state or impoverishment at the hands of a private landlord (in other words, no choice at all), those words are revealed as what they are.

Empty.