The end of patient confidentiality as NHS information is sold to insurers

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Americanised healthcare: It is appropriate that the only appropriate image I could find features dollars instead of pounds – because it is clear that the Tory government is changing the NHS into an Americanised insurance-based service.

Confidential information on NHS patients has been sold to insurance companies who used it in combination with information from credit rating agencies to identify customers and “refine” their premiums – increasing the costs of policies for thousands of customers, despite all the Tory-led government’s assurances to the contrary.

According to the Daily Telegraph, “a major UK insurance company… was able to obtain 13 years of hospital data – covering 47 million patients.

“As a result they recommended an increase in the costs of policies for thousands of customers last year.”

The revelation comes only days after plans to sell the confidential medical information of every NHS patient in England were put on hold amid a public outcry.

The care.data system, also called variously the General Patient Extraction Service (GPES) or the Health and Social Care Information Centre, was dreamed up as a money-spinning device by Jeremy Hunt’s Department of Health.

The aim is that, if you are an NHS patient in England, your GP will be forced to provide your confidential records, showing every medical condition you have ever had and providing intimate details of your current state of health, to a huge national database.

From there, your information may be sold on to private healthcare and pharmaceutical companies for “research”. The government has said the information would be “pseudonymised”, in an attempt to reassure you that you cannot be identified from the information to be provided to outside organisations.

Only last Friday the BBC was reporting that critics of the scheme were “scaremongering”.

The Corporation – which has failed to report the new development – quoted Tory MP George Freeman, founder of Patients4Data, which represents charities and drug companies (and not patients, apparently) as follows: “We cannot let opponents peddling scaremongering myths stop patients benefiting from this quiet revolution of modern medicine.”

And last month, NHS England categorically stated: “No data will be made available for the purposes of selling or administering any kind of insurance.”

Vox Political has made it clear from the outset that this is not true, and in fact it will be entirely possible to trace your medical information back to you. Now we have proof.

NHS England has delayed compiling the new database of English NHS patients until the autumn. You could help sink the scheme altogether, if you don’t want your government – and your NHS – to sell your information into the wrong hands. Just opt out of the data sharing scheme, using a form designed by the medConfidential website.

Make no mistake – the Conservative Party and the Liberal Democrats in Parliament have betrayed you.

They have already sold hospital patients’ information to insurance companies, and there can be no doubt that the intention is to do the same with GPs’ confidential records, with a consequential increase in insurance costs to people across the country.

They are turning your beloved National Health Service into an insurance-based scheme, on the same lines as the vastly more expensive American system.

They have been lying to you.

They intend to profit from selling your information – to companies that intend to profit by using it against you.

Are you going to sit there and let them?

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Will the government really penalise GPs whose patients opt out of data sharing?

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It seems the government has found a way to dissuade GPs from letting patients opt out of having their medical records sold to private firms – the threat of penalties or even an investigation into the way they run their practice.

Vox Political revealed earlier this month that the government is planning to make a profit from selling the private records of NHS patients in England to healthcare and pharmaceutical firms.

The records are said to be ‘anonymised’, but in fact anyone buying your details will be able to identify you.

The system, originally called the General Patient Extraction Service (GPES), now the Health and Social Care Information Centre, may also be described as the care.data scheme. Health Secretary Jeremy Hunt wants you to think the information will be used for medical research and screening for common diseases, but in fact it could be used by private health companies as evidence of failures by the National Health Service, and could help them undercut NHS bids to continue running those services – accelerating the privatisation that nobody wanted.

Patients have the right to withhold their data, but they must specifically inform their medical practice of their wishes. This is why medConfidential created a web page containing a special opt-out form, along with a form letter in various formats, allowing patients to opt out themselves, their children and any adults for whom they are responsible.

Now GPs are living in fear of reprisals if they don’t deliver enough details to the new system.

According to GPonline.com, Health minister Dr Daniel Poulter failed to rule out penalising GP practices with a higher-than-average proportion of patients opting out of new NHS data sharing arrangements.

In a written answer to Labour MP and health select committee member Rosie Cooper, Dr Poulter also refused to say what level of patient opt-out from the scheme would trigger an investigation.

Asked whether practices would be penalised, who would investigate practices with a high opt-out rate, and at what threshold this would apply, Mr Poulter said: “NHS England and the Health and Social Care Information Centre will work with the BMA, the RCGP, the Information Commissioner’s Office and with the Care Quality Commission to review and work with GP practices that have a high proportion of objections on a case-by-case basis.”

Ms Cooper took this as an admission that GPs were “being threatened and bullied into ensuring patients don’t choose to opt-out”.

Reacting on Twitter, NHS national director for patients and information Tim Kelsey ruled out fines for practices where large numbers of patients opt not to share data. He wrote: “Nobody is going to get fined if patients opt out.”

None of this offers a good reason for you to leave your medical records unprotected – in fact, it gives you more reasons to opt out than before, and might provide GPs with the excuse they need to retaliate.

Doctors have been pushed further and further by the Conservative-led government’s changes to the NHS. For example, they were told they would have a greater say in where the money went, as members of Clinical Commissioning Groups (CCGs), but that was not true – they don’t have the time to take part in such decisions so they have been handed over to firms that are often part of the private companies now offering services to the NHS (for a price).

Now they are being told they may face reprisals if they do not betray the principle of doctor-patient confidentiality.

But you can only push a person a certain distance before they push back.

How will NHS doctors in England respond?

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Failings over race earn Theresa May a figurative rap on the knuckles – twice!

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Bad taste in the mouth, Theresa? Not nearly as bad as the flavour that faced British citizens, wrongly accused of being illegal immigrants because of your race vans.

Anyone with an ounce of brain in their head knew the Home Office was going to be banned from using its advertising vans again – the ones telling illegal immigrants to “go home”, in the language of “knuckle-dragging racists”, as Owen Jones so memorably phrased it.

That is, anyone except everyone working at the Home Office, including the Secretary of State – Theresa May.

The Advertising Standards Authority ordered the Home Secretary not to put the vans on the streets again, saying the phrase “go home” was indeed a reminder of a racist slogan and “clearly carries baggage”.

The authority also said the posters on the vans referred to inaccurate arrest statistics, claiming there had been 106 arrests in the area in the past week. The ASA said this was misleading as it did not relate to accurate arrest statistics for the specific areas where people would have seen the vans.

They were out in Barking and Dagenham, Redbridge, Barnet, Brent, Ealing and Hounslow – areas the Home Office believe many illegal immigrants live and work.

The report stated: “The ad must not appear again in its current form. We told the Home Office to ensure that in future they held adequate substantiation for their advertising claims and that qualifications were presented clearly.”

The ASA had received 224 complaints about the vans from individuals, campaign groups, legal academics and the Labour peer Lord Lipsey, who is from Vox Political‘s home constituency of Brecon and Radnorshire, we’re proud to say.

But in an impressive display of tightrope-walking the ASA said the van campaign was not offensive or irresponsible. While the “Go home” slogan had been used in the past to attack immigrants, its report said, the Home Office was now using it in a different context.

Oh! Well, that makes it perfectly acceptable, doesn’t it? Never mind the possibility that nobody seeing those vans in the street was ever likely to consider such a nuance, it was “unlikely to incite or exacerbate racial hatred and tensions in multi-cultural communities” because the intention was different!

What about the message implied by these vans – a message that was clearly pointed out by commentators at the time – that Conservative-leaning voters should treat with hatred, suspicion and contempt anybody who is not a white, Anglo-Saxon protestant?

What about the way they encouraged suspicion that another person may be an illegal immigrant?

What about the way the Home Office Twitter account spent the week-long pilot period in which the vans were traipsing round London tweeting messages about the number of illegal immigrants it wanted us to believe had been detected or turned themselves in? Can we believe those figures, if the number on the vans themselves was fake?

What about the photographs transmitted by the same Twitter account, of suspects who had been arrested, before they had been charged? Does anybody remember if any of these people were the white Anglo Saxons mentioned a couple of paragraphs ago?

What about the spot-checks at railway stations, where anybody who was not clearly white could be stopped by immigration officers wearing stab vests who demanded to see identification proving they were in the UK legally? How galling was it for British citizens – people who were born and raised in this country – to be faced by a flak-jacketed fiend who (it is claimed) became unreasonably aggressive when challenged over their right to behave in this manner without direct cause for suspicion?

What about the fact that the Home Office undermined its own arguments by being unable to reveal the different ethnicities of the people who were stopped – information that was vital in determining whether they had been breaking the law?

What about the fact that all of this effort was hugely out of proportion when considering the number of illegal immigrants it was likely to net? Forget forced labourers who are brought into the country but kept hidden by criminal organisations – these are not responsible for what happened to them and their cases are likely to be part of criminal investigations into the people holding them captive. Who does that leave?

And what about the possibility that this was not about illegal immigrants at all, but a sop to all those people – many of them Daily Mail readers, we expect – who believe that immigration of any kind is out of control? These are people who need to get to grips with the facts. As reported by this blog and others back in August, the UK has a lower immigrant population than almost any ‘developed’ nation; they are assessed via a points-based system, only seven per cent are asylum-seekers and only a third of asylum claims are accepted. They do not have access to most of the benefits available to UK citizens and what they do receive are nowhere near the same value. They are one-third less likely to claim those benefits, meagre as they are, than UK citizens.

The Unite union has been seeking legal advice over this matter, and the Equality and Human Rights Commission has also been investigating this. It will be interesting to see what they say.

But a rap on the knuckles over bad information is a good start. Naughty, naughty, Theresa May!

On the same day, the Home Secretary – along with Justice Secretary Chris Grayling – faced questions from two Lords committees on the UK’s 2014 opt-out from EU police and criminal justice measures, as part of a reopened inquiry.

If this opt-out is exercised, the Coalition government has listed 35 measures that it would seek to rejoin, and it is these that prompted the Lords to reopen their inquiries.

Parliament’s own website said they were likely to face questions on how they defined the national interest in selecting the 35 measures the UK would seek to rejoin, and whether the changes will break the UK’s obligations to European arrest treaties.

And there were questions to be answered on whether non-participation on measures dealing with xenophobia and racism (the issues at the heart of the matter with the advertising vans) sent an “unfortunate” signal to other EU member states that the UK, under a Conservative-led government, no longer regards those issues as important.

Fortunately for Theresa May, these proceedings do not appear to have been made public.