Petition demands fibromyalgia test be fit to work

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allowance, Department, Disability Living Allowance, DLA, DWP, employment, ESA, fibromyalgia, government, health, Mansel Aylward, medical, Mike Sivier, mikesivier, Pensions, people, petition, point scoring system, politics, rheumatologist, sick, social security, support, Universal Credit, Vox Political, welfare, work

The Department for Work and Pensions is being told to sort out its benefit assessment system after campaigners said it is rigged against people who suffer from Fibromyalgia.

The petition – ‘Change DWP Medicals for Fibromyalgia’ – may be found here.

Long-term readers will know that Fibromyalgia is one of the conditions suffered by Mrs Mike, partner of Vox Political writer Mike Sivier. She has hijacked this space to post the following message from the petitioners:

“In brief, the petition asks that Department of Work and Pensions medicals for Fibromyalgia be carried out by a qualified rheumatologist, and that the decision regarding the receipt of benefits not be based on the current point-scoring system.

“The full petition reads:

“‘We, the undersigned, call on the British Government to ask that DWP medicals for Fibromyalgia be carried out by a qualified rheumatologist, and that the decision made about the receipt of benefit not be based on a point scoring system.’

“‘At the moment the DWP are using an outside agency to carry out medicals on people with medical conditions, and using a point scoring system to decide whether or not people are entitled to benefits.

“‘Most of the medicals are carried out by a nurse or other healthcare professional in less than an hour by asking a few targeted questions. With a condition like Fibromyalgia, it takes a qualified rheumatologist to diagnose the condition and understand the treatment that needs to be implemented to attempt to manage the pain of the condition.

“‘A rheumatologist would understand the pain and associated problems that Fibromyalgia sufferers face on a daily basis. Yet the nurse or health care professional that fills in the forms for the medical sees someone for less than an hour with no understanding of the condition and how it affects each person individually.

“‘It is not possible for someone of this level to understand the issues that Fibromyalgia suffers face, and the medicals should at the very least be carried out by a rheumatologist.

“‘During the medical you are assessed on how much you can move in certain directions. At no point are they taking any interest in how much pain you are in whilst this is going on, or how many painkillers you have to take afterwards.

“‘A favourite question is, “How far can you walk without discomfort?” The answer for a most Fibromyalgia sufferers is over 200 metres if they absolutely have to. What they don’t ask is, “How much pain are you in?” Most Fibromyalgia sufferers are in pain before they start to walk; walking just increases the pain.

“‘The point scoring system is stupid and unfair and needs to be abolished. Fibromyalgia sufferers are being consistently turned down for benefits that they should be entitled to, as this is a condition recognised by the DWP – and I quote, “Professor Aylward, on behalf of the DWP, reaffirmed that the DWP recognises fibromyalgia as a real and disabling condition, and not just something that is ‘all in the mind.'” If this is recognised by the DWP as being a “real and disabling condition” then why are diagnosed sufferers being refused DLA and ESA?

“‘It has been reported that Fibromyalgia Sufferers often suffer more pain than people diagnosed with rheumatoid arthritis.

“‘Despite the DWP’s statement, Fibromyalgia sufferers are being discriminated against, as the condition is seen as “invisible”, like many other conditions.'”

To sign the petition, go to this site and click the “Sign the petition” button near the bottom of the page. For more Fibromyalgia, Chronic Fatigue Syndrome and Natural Wellness news, sign up for free HealthWatch newsletters.

That’s the end of Mrs Mike’s bit. As someone who lives with a person who has Fibromyalgia, dear reader, you may safely conclude that I know a fair few things about the subject myself. I sat in on Mrs Mike’s work capability assessment and I can vouch for the truth of the statements regarding questions asked during that interview and the physical examinations that take place.

Mrs Mike’s mobility was checked very thoroughly during her assessment but no interest has ever been shown in the fact that she spent the next three days on the sofa in our living room, unable to move because of the pain she was suffering.

The question about walking is far more subjective. Obviously, after the WCA, Mrs Mike couldn’t walk anywhere without discomfort but, even when she is well enough to move, pain always sets in within a few paces and the chance to sit down is regarded as a blessed relief.

Yet Mansel Aylward (for it was he) said the DWP recognises Fibromyalgia as a “real and disabling condition”.

While these tests are carried out by people who are not qualified to recognise the symptoms of the condition and the problems it causes, the DWP is only paying lip-service to its claims about Fibromyalgia.

Please sign the petition and help ease the lives of people with Fibromyalgia across the UK.

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The fakery and failure behind the DWP’s new ‘health’ scheme

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absence, Adolf Hitler, appeal, BBC, benefit, benefits, big lie, biopsychosocial, Chronic Fatigue Syndrome, Chronic Pain, cumulative, Department, DWP, economic plan, employee, employer, employment, Employment and Support Allowance, ESA, fail, fake, fibromyalgia, fit for work, health, Health and Work Service, Iain Duncan Smith, ill, Incapacity Benefit, job, Labour Force Survey, leave, long term, Media, Mike Sivier, mikesivier, nudge, occupational health, Pensions, people, politics, public relations, sick, social security, subjective, Telegraph & Argus, unit, Vox Political, welfare, work, work capability assessment

It seems that the Department for Work and Pensions is sticking to the ‘Adolf Hitler’ model of public relations: If you tell a big lie and repeat it often enough, people will believe it. The press release announcing the new ‘Health and Work Service’ is riddled with long-debunked old lies – and one new statement that deserves our scrutiny.

This is the press release used by the BBC in its article on Saturday, telling us that the new, privately-run service is needed to combat the high cost of long-term absence from work.

It seems to be the DWP’s new practice to pass announcements to – let’s call them “trusted” – media outlets before putting them up on the government’s own press website, as a kind of test-run, allowing any credibility problems to be fixed before the government commits itself in an official way.

That’s why the announcement appeared on the government website yesterday (Monday) – two days after the BBC broke the story. Now – in just half the time it took to appear – let’s look at why it’s a load of rubbish.

“As many as 960,000 employees were on sick leave for a month or more each year on average between October 2010 and September 2013, the government has revealed,” the document begins.

Oh really? The DWP reached this figure by applying the findings of a survey, showing the ratio of long-term absences to total days of sickness absence, to findings by the Labour Force Survey showing the total number of days of sickness absence in the UK. That’s 9,000 sick days and 70 absences, applied to an average of 120 million sick days per year. This is based on 2,019 interviews with employees. There’s just one problem.

At the time covered by these surveys, there were around 4.9 million private sector employers.

Considering the huge size difference between the sample surveyed and the body it represents, it seems unlikely in the extreme that the figure is accurate. If it is right, it would be by luck; it’s probably wrong. The figure might as well have been made up – and you should treat it as though it was.

“The government has already taken big steps in getting people on long-term sick benefits back into work as part of the government’s long-term economic plan, with almost a quarter of a million coming off incapacity benefits since 2010-” Let’s stop there and examine the information content of this sentence so far.

The “government’s long-term economic plan” is a phrase that is being shoe-horned into every press release possible and means nothing. There never was a “long-term economic plan”, and there isn’t one now. Have you seen it? Of course not – it doesn’t exist. This is just a comforting nonsense inserted to lull people into false security that somebody knows what they are doing; I suspect the newly-privatised “nudge” unit may have had something to do with this.

As for “almost a quarter of a million coming off incapacity benefits since 2010”, check out this interview with Iain Duncan Smith, published in the Telegraph & Argus in 2010. He said: “I intend to move 1.5 million off incapacity benefit by 2014.”

It’s now 2014. We don’t have up-to-the-minute figures but on November 13 last year, the DWP press office helpfully tweeted us its then-current figure for people moving off incapacity benefits in a handy chart: 156,000.

That is a long way from a quarter of a million, and only around one-tenth of the Secretary-in-a-State’s 2010 target.

“- and almost a million who put in a claim actually have been found fit for work.” This is a bare-faced lie. It relates to a statement that 980,400 people were judged capable of work between 2008 and March 2013, but there are two problems with this. Firstly, it does not take into account the number of successful appeals against the ‘fit for work’ judgement (125,700); when adjusted to account for these, the total drops to 854,700. Secondly, this refers to the cumulative number of ‘fit for work’ outcomes of initial functional assessments since October 2008, and it seems likely that many people will have made repeat claims after being knocked off-benefit by an adverse decision. We do not know how many people have done this. Therefore the figure is meaningless.

So far, the DWP has told us that working people get sick (no surprises there), that it has failed to reach its target for clearing people off incapacity benefit and that its work capability assessment system is failing to push as many off-benefit as it should, because it is riddled with errors.

How does this connect with the creation of a new ‘Health and Work Service’, dedicated to ensuring that people who spend more than four weeks at a time off work with an illness get back into their job with a minimum of difficulty?

It’s obvious, isn’t it?

This is a scheme to ensure that people are discouraged from claiming incapacity benefits; the idea is that a drop in new claims, coupled with the number of uncontested ‘fit for work’ decisions, might lead to a larger drop in the number of active claims – which means the amount of money being paid out in benefits would also drop.

Inclusion of the word ‘health’ in the title of the new service is misleading, as it seems unlikely that consideration of an employee’s physical condition will have anything to do with the aim of the exercise.

Look at what the release has to say: “The Health and Work Service will offer a work-focused occupational health assessment and case management to employees in the early stages of sickness absence.”

It continues: “The work-focused occupational health assessment will identify the issues preventing an employee from returning to work and draw up a plan for them, their employer and GP, recommending how the employee can be helped back to work more quickly.”

Health doesn’t get a look-in.

No, what we’re most probably seeing is an expansion of the “biopsychosocial” method employed in work capability assessments, in an attempt to convince sick people that their illnesses are all in their minds. Don’t expect this approach to be used for people with broken limbs or easily-medicated diseases; this is for the new kinds of ‘subjective illness’, for which medical science has not been prepared – ‘chronic pain’, ‘chronic fatigue syndrome’, fibromyalgia and the like.

People with these conditions will probably be sent back to work – with speed. Their conditions may worsen, their lives may become an unending hell of pain and threats – I write from experience, as Mrs Mike spent around two years trying to soldier on in her job before finally giving up and claiming her own incapacity benefits – but that won’t matter to the DWP as long as they’re not claiming benefits.

That is what we can all expect from the new ‘service’.

It will be a fake, necessitated by failure.

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Here’s why Labour needs to go a lot further to win back our trust

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Anne McGuire, Association of British insurers, Atos, back-up plan, benefit, benefits, biopsychosocial, capita, Chronic Fatigue Syndrome, Chronic Pain, condition, Conservative, dead, death, degenerative, Democrat, Department for Work and Pensions, die, disability, Disability Living Allowance, disabled, DLA, doctor, DWP, Ed Miliband, Employment and Support Allowance, ESA, fibromyalgia, George Engel, government, health, illness, Incapacity Benefit, income protection, insurance, Labour, Liam Byrne, Lib Dem, Liberal, Lord Freud, Lyme disease, Mike Sivier, mikesivier, Mo Stewart, Multiple Sclerosis, New thinking on the welfare state, people, Peter Lilley, policies, policy, politics, Reform, sick, social security, Star Wars, Steve Webb, subjective, Tories, Tory, unemployment, unum, Vox Political, WCA, welfare, work, work capability assessment, workplace

Only days after Ed Miliband announced a Labour government would sack Atos, the party’s conference is hosting an event part-funded by the architects of the ‘work capability assessment’ administered by that company – the criminal American insurance giant Unum.

‘New thinking on the welfare state’ is a fringe event taking place at the Labour conference on Monday, September 23, organised by the right-wing thinktank Reform (which has Unum as one of its funders) and sponsored by the Association of British Insurers (which includes Unum among its members). Does anybody doubt that it has been arranged in order to give Unum a chance to influence high-ranking party members? No?

Then consider: This is a private round-table policy seminar, staged by Anne McGuire MP. Rank and file Labour members aren’t invited – attendance is by invitation only. Can you smell a rat? Still no?

The event has already been staged at the Liberal Democrat conference (by Steve Webb MP, whoever he is), and will also be a feature of the Conservative Party conference, courtesy of that turncoat floor-crossing slime Lord Freud. It shouldn’t take a genius to work out that Unum wants to ensure that all three parties have the same social security/welfare policy, going into the next election – and that Unum continues to figure prominently in the formulation of that policy.

If you didn’t smell a rat infestation before, by now you’re probably wondering why pest control hasn’t been called.

Ed Miliband knows that any change of the organisation administering work capability assessments is purely cosmetic; the Conservative-led Coalition itself is bringing in other companies to carry out the work, and Capita has already been taken on to carry it out in some areas.

It is the policy itself that must change.

Unum knows all about that policy. The company came up with it in the 1990s as a way to combat claims on its health insurance policies for ‘subjective’ illnesses such as ‘chronic pain’, ‘chronic fatigue syndrome’, fibromyalgia, multiple sclerosis, Lyme disease and others – by aggressively disputing whether a claimant was ill.

It based its new test on the Biopsychosocial Model of illness developed by the psychiatrist George Engel, which is itself an unproved theory. Unum removed the bio- and -social aspects in order to concentrate on the ‘psycho’ – the claim that a person’s illness is all in their mind; that they are imagining it.

This worked very well for the company until the American people realised that they were being diddled out of their insurance money and very large lawsuits were launched that ended with the company having a criminal record in several US states.

Undaunted by this, Unum branched into the UK and cosied up with then-social security minister Peter Lilley, who wanted to cut the number of people claiming disability benefits. Unum saw an opportunity here, with a long-term goal of making state disability benefits useless to the British citizen and forcing them to pay out for the companies duff health insurance policies – which had already fallen foul of the law in America.

That’s why the work capability assessment takes precedence over any evidence your doctor might provide to support your claim, and it’s also why doctors are being actively discouraged from providing any evidence at all; that’s why UK law currently sees a glowing future for people who may be paralysed, but for one finger, as a button pusher; that’s why people with Parkinson’s Disease or other degenerative conditions are being told they will be able to work again in the future; and that’s why thousands upon thousands of people have died as a result of the current policy – especially since the Conservative-led Coalition came into office in 2010.

Meanwhile, Unum has begun a mass-marketing campaign to encourage able-bodied British citizens to invest in ‘Income Protection Insurance’ and a scheme known as the ‘Back-up Plan’. These are only available via the workplace, and it is understood that it has been designed to ensure that the company can resist paying out if anybody should be unlucky enough to have to make a claim.

So you see, the plan is to leave the sick and disabled of this country with no support whatsoever; they can either take out Unum’s insurance policies, pay the company a fortune in premiums and get nothing in return – or they can throw themselves at the mercy of a state which has no mercy and be refused the benefits for which their taxes have been paying ever since they were old enough to pay taxes in the first place.

Either way, Unum wins. For younger readers, it’s like the plot of the prequel trilogy in the Star Wars saga, where the character who becomes the Emperor engineers a war in which he controls both sides. So you see? Those films weren’t as bad as we all thought.

But of course, any person or organisation that intentionally creates a parallel between itself and the most evil character in recent fiction should absolutely not be anywhere near the real-life political decision-makers of this or any other country.

That’s why Mo Stewart, the retired healthcare professional and disability researcher who has spent four years examining the relationship between Unum and the UK government, has contacted Ms McGuire, demanding to know why she is having anything to do with the firm.

She wrote: “Given the amount of evidence against the practice of the dangerous corporate giant, Unum Insurance, and the fact that Labour MPs have exposed their influence with government during debate, the British disabled community are wondering why you would chose to host a fringe meeting by Unum at the conference on Monday?

“‘New Thinking on the Welfare State’ it seems is the title of the meeting, and they should know since Unum have been helping to systematically destroy the welfare state, as welcomed by various governments, since 1994.

“If you were planning to cause offence, you couldn’t have done a better job.

“Keep betraying the British disabled people and you’ll be waiting in the wings for a lot longer before Labour ever return to Government.

“I have spent the past 4 years exposing the links between the DWP, Atos Healthcare & UNUM Insurance. Some of your colleagues are very familiar with my work, which is to be considered by the UN within weeks, and I suggest that if you wish to be taken seriously as the Shadow Minister for Disabled People then you need to be familiar with this evidence.”

This blog wholeheartedly supports Mo Stewart’s position.

If you want to add your support, you can contact Anne McGuire by emailing anne.mcguire.mp@parliament.uk – and you might wish to include Ed Miliband and Liam Byrne (while he’s still there): ed.miliband.mp@parliament.uk and byrnel@parliament.uk

If you’d like to do more, feel free to broadcast that facts about Unum as widely as you can. There seems to be a media blackout on mention of this criminal organisation’s involvement with the state, so you cannot rely on the national news media. This means word of mouth – viral networking – is the only alternative.

Spread the word.

Oh, and Ed? Mr Miliband? We’ll all be waiting for you to make a slightly more solid commitment to the British people. You know what it is because we’ve made it perfectly clear already:

New policies on sickness, disability and incapacity benefits that are humane to claimants and rely on real medical evidence – not the opinions of an unqualified ‘decision-maker’ at the DWP.

Expel Unum from any position in which it may influence the government – including fringe events at party conferences. This may mean dismantling the DWP altogether as that organisation appears to have been terminally compromised.

End the work capability assessments. Find a different way to assess people’s ability to work – perhaps one that involves knowledge of what jobs are available and whether employers have any intention to take on people with limited abilities… Something practical, rather than the dribble that masquerades as current government policy.

And, for goodness’ sake, get rid of Byrne (and McGuire… and let’s not forget Stephen Timms) and replace them with backbenchers who actually understand and sympathise with the plight of benefit claimants who have been made to suffer under a needlessly brutal system.

You don’t dare betray the British people again.

If you do, you’ll have more than eggs to dodge, whenever you dare show your face in public.

The DWP: Where incompetence is described as a ‘positive benefit outcome’

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appeal, Atos, benefit, benefits, cap, Citizens Advice Bureau, claim, close, Coalition, Conservative, deceive, Department, Department for Work and Pensions, die, disability, disabled, DWP, Employment and Support Allowance, ESA, fibromyalgia, FOI, Freedom of Information, government, health, Iain Duncan Smith, incompetence, incompetent, Information Commissioner, internal review, Job Centre, kill, Mike Sivier, mikesivier, national, Pensions, people, politics, poor, positive benefit outcome, public sector, review, scandal, shut down, sick, social security, suicide, support, terminate, Tories, Tory, unemploy, unum, vexatious, Vox Political, WCA, welfare, work, work capability assessment, work programme provider, work-related activity

Good shot: Work and Pensions secretary Iain ‘Returned to Unit’ Smith takes delivery of the nation’s verdict on his management of the benefits system. No wonder Britain is falling apart, if the entire Coalition government works on similar lines.

The Department for Work and Pensions is now such a shambles it should be a national scandal.

Not only do its ministers try to deceive you about its purposes and successes (12,000 people did NOT sign off benefits because of the cap, for example, and they still won’t tell us how many people died in 2012 while going through the ESA assessment procedure), but ground-level workers are praised if inappropriate action on claims results in a sick or disabled person being refused benefit or their claim being shut down. This incompetence is described as a ‘positive benefit outcome’.

I write from experience – Mrs Mike appears to be one such ‘positive benefit outcome’, despite our best efforts to prevent this.

Let me tell you a tale. I shan’t go into all of Mrs M’s details as they’re not really necessary and some of them are disturbing; suffice it to say that she has multiple long-term conditions.

She was subjected to a Work Capability Assessment for ESA in July last year, and received notification dated July 17 that she had been put into the work-related activity group, commencing August 14. This meant she would have until August 13 this year to recover from conditions which have plagued her for more than a decade; a totally unrealistic target invented by people whose main aim is to sell bogus insurance policies (see previous articles on Unum).

Being in the WRAG means that you have to try to prepare for work, with guidance to help introduce you back into the job market. Mrs M waited very patiently to be contacted about this, and was eventually called in to the local Job Centre Plus in December last year – one-whole-third of the way through her claim period.

Arrangements were made for her to have a telephone interview with a representative from a company that provides help in getting people back to work, but there were more delays. When it finally happened, the lady on the line told me: “I’ve spoken to your partner and from what she tells me, we can’t do anything to help her. She’s not going to get better in the timeframe within which we work. I know people with fibromyalgia and that’s just not going to happen. I recommend that you appeal against the decision to put her in the work-related activity group… Ask for a review of the decision, with a view to going into the support group. Go back to her doctor and request reassessment.”

We sought advice from the Citizens Advice Bureau over the possibility of making an appeal, and it seemed that there were legitimate grounds for doing so – not just the word of the work programme provider (my understanding is that this is the occupation of the lady who phoned us) but also medical evidence that had come to light after the WCA. So, with CAB help, Mrs M put in her appeal in February. She has yet to receive a response from the Department for Work and Pensions.

In May, however, she did receive another claim form. I filled it out for her (writing for prolonged periods increases the pain) and we sent it off on May 17. There has been no acknowledgement of receipt and the DWP has never mentioned it since.

This is unsurprising as we have had no contact at all from the DWP, from the time we received that form until yesterday (August 19), when Mrs M telephoned the Job Centre to find out what’s going on. Inevitably, this led to the phone being handed to me. “Oh yes,” said the man on the end of the line. “This claim terminated on August 13.”

So it seems the DWP is now in the habit of closing claims without informing the claimants. (In fact this is the second time someone I know has experienced this impoliteness; it happened to someone else in March).

We are now unexpectedly having to deal with the loss from our household income of more than £110 per week – that’s nearly £6,000 per year. We had hoped to avoid the possibility of this happening by means of the appeal, but the gentleman at the Job Centre helped us out there as well: “Yes, an appeal has been logged.” I asked what we being done. “It doesn’t say.”

So nothing has been done, then.

This is a serious matter. Firstly, the decision after the WCA was incorrect – Mrs Mike should have been put in the support group but was put in the WRAG instead. This could be because assessors are on orders to put only around 12 or 13 per cent of claimants into the support group, whether their conditions demand it or not, on the orders of ministers at the DWP.

Then there’s the nonexistent handling of the appeal. The DWP seems to be pretending it hasn’t happened.

Then there’s the repeat ESA50 form in May. What happened to that?

And finally there’s the complete – and no doubt intentional – failure to notify Mrs M of the termination of her benefit, a termination that should not have taken place if the DWP had done its job properly.

Is this what happens when the government lays off more than 400,000 public sector workers – the system seizes up because nobody can do the job properly anymore?

Fortunately – and full credit to him for doing this – my Liberal Democrat MP tweeted me yesterday evening and offered to help, so I have provided him with the details and hopefully something will come from that. We have a little cash coming in and a few friends who can help, so we are not in dire financial straits yet.

What if we didn’t have these safety nets, though?

By now, all readers of this blog should be well aware of the widely-reported statistic claiming that, on average, 73 people die every week because of bad decisions by the DWP – they either become depressed and commit suicide or the strain of going through the process worsens their health problem, the problem the DWP considered too inconsequential to merit receipt of benefit, until it kills them.

That statistic comes from a DWP report released more than a year ago and is now out of date. I have been trying to secure the release of up-to-date numbers but ministers have done everything in their power to prevent this and the only reasonable conclusion is that the death toll is now far worse.

A Freedom of Information request earlier this year was refused on the grounds that it was ‘vexatious’ and a demand for an internal review has been met with stony silence for more than a month. Today I emailed ministers to ask when they were going to respond or if I should just proceed to the next stage, which is a complaint to the Information Commissioner.

So you see, the DWP is in a terrible, terrible mess of incompetence rewarded and extravagant claims that amount to poorly-executed attempts at distraction fraud.

What if this is a microcosm for the entire Coalition government? What will be the result?

A weakened Britain, that’s what.

This blog has said it before and will say it again: They would kill us and call it ‘help’.

Are British workers being lured into health insurance that will never pay out?

Tags

Atos, back, biopsychosocial, British, chronic, Coalition, Department of Social Security, Disability Living Allowance, DLA, Employment and Support Allowance, ESA, fatigue, fibromyalgia, George Engel, government, health, healthcare, IB, illness, Incapacity Benefit, income, insurance, Lyme disease, mental, model, Multiple Sclerosis, nervous, pain, Personal Independence Payment, Peter Lilley, PIP, plan, protection, self-reported, subjective, syndrome, UK, unum, up, WCA, work, work capability assessment

Working people in the UK could be facing a huge drain on their income, if they join an insurance scheme being offered by a discredited American firm.

It seems that the company behind the hated Work Capability Assessment that has denied disability benefits to thousands of genuinely sick and disabled people, has begun a mass-marketing campaign to encourage able-bodied members of the British public to invest in ‘Income Protection Insurance’, and another scheme known as the ‘Back-up Plan’.

This insurance scheme is only available via the workplace, and it is understood that it has been designed to ensure that the company can resist paying out whenever a claim is made.

In other words, if you join the scheme, you will be giving away your money to a criminal firm. If you become ill or suffer disability in the future, you will not receive a single penny of the insurance money that is due to you.

That is the allegation against Unum Insurance, the American giant that has spent more than two decades advising successive British governments on how to avoid paying sickness and disability benefits to the most deserving claimants in our society.

If you have been contacted in the workplace and offered a chance to take out this insurance, please get in touch. Your experience of this system and insights into its operating procedures could be invaluable.

For those who don’t know the Unum story, you can read some of it here. Unum’s bosses devised their current system to combat the rise of ‘subjective’ illnesses such as ‘chronic pain’, ‘chronic fatigue syndrome’, fibromyalgia, multiple sclerosis, Lyme disease.

The solution devised by the bosses was to reduce the number of successful claims it paid out, by aggressively disputing whether the claimant was ill. So the company skewed its medical examinations to its own favour by questioning illnesses that were “self-reported”, labelling some disabling conditions as “psychological”, and playing up the “subjective” nature of “mental” and “nervous” claims.

The acknowledged basis for this attitude is the Biopsychosocial Model of illness, developed by the psychiatrist George Engel – but it’s a bastardised version, removing the bio- and -social aspects and concentrating on the ‘psycho’. This version of the theory, as used by Unum, has been utterly discredited. It is nonsense, totally disregarding such inconvenient medical procedures as diagnosis and prognosis, or limited life expectancy.

But it proved a great success for Unum – so much so that the UK government sought advice from the company in the early 1990s, when Peter Lilley was running the Department of Social Security. He wanted to reduce the number of disability claimants on his books, and Unum was only too happy to help out. It has been at the heart of disability benefit policy ever since.

We have Unum to thank for the Work Capability Assessment (administered by another private firm, Atos – an IT firm that has no expertise in healthcare, even though that word occasionally appears on its company logo). The recommendations made by Atos representatives, following these assessments, have led to the deaths of at least 73 genuinely ill people every week (according to government figures that are now almost a year old), who have claimed Employment and Support Allowance (formerly Incapacity Benefit). The real figure may be much higher.

The Coalition government considers this to be a great achievement and has now begun expanding the Work Capability Assessment regime to cover claims for Disability Living Allowance, now branded the Personal Independence Payment, with criteria that are much more difficult to achieve.

We can all expect many more deaths to arise from this.

Now, it seems, Unum believes the UK is ripe for bleeding – and that is why it is trying to sell its bogus insurance to working people here.

If you have been contacted, please get in touch.

For further information (with annotations pointing to the really damning evidence) see ‘The Hidden Agenda’ by disability researcher Mo Stewart.

Mark Hoban: A message isn’t scaremongering if it’s true

Tags

Atos, Atos Healthcare, benefit, benefits, biopsychosocial, Coalition, Conservative, court, Department for Work and Pensions, disability, Disability Living Allowance, disabled, DLA, DWP, Employment and Support Allowance, ESA, fibromyalgia, government, Group, health, Health and Social Care Act, IB, Incapacity Benefit, Labour, Liam Byrne, Liberal, Liberal Democrat, mark hoban, mental health, Mike Sivier, mikesivier, National Health Service, NHS, Parliament, people, Personal Independence Payment, PIP, politics, public accounts committee, sick, Tories, Tory, tribunal, Vox Political, WCA, welfare, work capability assessment, work-related activity, WRA, WRAG

Mark Hoban, sending even his colleagues to sleep in another Parliamentary debate.

Employment minister Mark Hoban has accused Parliament’s public accounts committee of “scaremongering” after it attacked the Department for Work and Pensions’ work capability assessment.

He said, according to the BBC: “Rather than scaremongering and driving down the reputation of the WCA, critics might like to acknowledge the fact that independent reviews have found no fundamental reforms are needed to the current process because of changes we’re making.”

That sounds a lot like self-justifying nonsense to me.

I wonder whether we may reasonably expect any better of him, when we know he edits comments on his own Facebook page to remove anything remotely critical. If you don’t believe me, just you go there and try it!

But okay, let’s give him the benefit of the doubt and try examining the committee’s criticisms at ground-level. We all know my partner, Mrs Mike, has been – and is continuing to go through – the assessment system. Let’s go through the committee’s conclusions with reference to her example.

The first conclusion was that “the decision-making process for new Employment Support Allowance applications and Incapacity Benefit reassessments all too often leads to the wrong decisions and is failing far too many people”. The decision after Mrs Mike’s assessment was that she should go into the work-related activity group for ESA. It was only after she had an interview with a WRA provider – six months after the assessment – that they told us the decision was wrong, she should be in the support group, and we should seek reassessment. So in our case, I find that the committee’s conclusion was ACCURATE.

Conclusion number two: “The Work Capability Assessment may unduly penalise people with specific health problems. The one-size-fits-all approach is not appropriate for particular groups, for example, people with mental health, rare or variable conditions. The process is too inflexible and makes it extremely difficult for individuals with particular conditions to demonstrate the impact of their conditions on their ability to work. Too often the process is so stressful for applicants that it can impact on their health.” Mrs Mike has fluctuating conditions – fibromyalgia, mental health problems, and a back condition that causes pain, although the level of that pain can vary from day to day. As I have demonstrated in my response to the first conclusion, she was put into the wrong group – in the opinion of a work-related activity provider employed by the Department for Work and Pensions. That’s pretty conclusive! I was present at the work capability assessment interview and can assure any doubters that it is an extremely stressful process – not just physically, because claimants have to prove the limits of their physical abilities, but also emotionally. It took her days to recover her composure after the assessment. There are continuing issues to do with mental health, as the current nature of the process – leaving people waiting for months at a time before a decision, or until they can move on to the next step, then the disappointment of being told there was a mistake and they have to go through the whole process again – seems engineered to create mental instability. Therefore I must find that in this case also, the committee’s conclusion was ACCURATE.

The next conclusion states: “The Department does not know the full cost to the taxpayer of the overall decision-making process for Work Capability Assessments. Whilst some costs are known, such as the £26.3 million paid to HM Courts and Tribunals Service for its work on appeals, there is little information on the cost and impact on the National Health Service or on some of the internal interactions within the Department.” Whilst it is true that Mrs Mike has been to see her doctors (physical and mental) since her assessment took place, and throughout the ensuing mess, I would not try to put a price on that extra process. Therefore I cannot say for sure whether this conclusion is accurate or not. However, we all know that a high proportion of appeals are won – more than 90 per cent of those in which the claimant has sought legal representation, in fact, so it is reasonable to believe that the government is paying a high price to the courts. On that basis alone, it is reasonable to question whether the government is getting value for money.

Conclusion four: “The Department has failed to develop a competitive market for medical services. The market for medical service providers is under-developed and Atos Healthcare is currently the sole supplier for all the Department’s medical assessments. It has also been awarded two of the three current contracts for the Personal Independence Payment. The Department is too relaxed about the risk to value for money resulting from a dependence on a monopoly supplier, and on the limitations this has on the Department’s capacity to remedy poor performance.” Personally, I am unhappy with the thought that a profit-centred marketplace should be created around people’s health. This is why I opposed the Health and Social Care Act that has caused so much harm to the NHS in England since it became law. However, the point that it is hard to remedy poor performance when a single company holds a monopoly on assessments is reasonable. Mrs Mike’s assessment was carried out by Atos. That assessment reached a wrong conclusion. Who will carry out her reassessment? Atos. You see the problem.

Worse than that, though, is the underlying issue – that Atos has been briefed to push as many people off-benefit as it can. This is why the work capability assessment is based on the “psycho” part of the biopsychosocial model, itself a discredited medical theory. The aim of the assessment process is to tell claimants that their illnesses or disabilities are all in their minds, and that in fact they are perfectly capable of work. Considering the Labour Party’s policy is reprehensibly shoulder-to-shoulder with that of the Coalition in this regard (Liam Byrne very recently said Labour would continue reforms of social security benefits along similar lines) there seems very little hope for people with disabilities in the future. I find the committee’s conclusion ACCURATE in the case of Mrs Mike, and note with trepidation that the future seems bleak, no matter what government we have in the future.

I do not intend to address the fifth and sixth conclusions as they seem to be operational matters within the Department for Work and Pensions. Before Mr Hoban claims any victories, I should add that all the reports I have seen tend to bear out the comments of the public accounts committee.

But the final conclusion states: “The Department must improve its internal processes to improve the quality of decision-making and contract management. The size of the Department and its impact on individuals and on the public purse requires us to have the utmost confidence in the capability of the Department to deliver. Robust systems are a crucial part of this. We are concerned that the Department is unduly complacent regarding the quality of the decision-making process, particularly given the hardship which can be caused to individuals when the decision is wrong.” Clearly, neither I nor Mrs Mike have any confidence in the DWP’s ability to deliver the right decision regarding a person’s ability to work. Therefore I find the committee’s comment about complacency ACCURATE. The hardship which can be caused to individuals is something my partner and I are being forced to face at the moment – as a possibility, should a reassessment decision go against her. We are all familiar with cases in which people have either died from the worsening of their health conditions (conditions denied by the DWP and Atos) or from suicide provoked by a worsening of their mental health due to the assessment process and fear for the future of themselves and their families. These are real issues.

By suggesting such fears are “scaremongering”, Mr Hoban hugely weakens his own case.

Unum, Atos, the DWP and the WCA; Who gets the blame for the biopsychosocial saga?

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Mansel Aylward, former chief medical officer at the Department of Work and Pensions, now director of the (UnumProvident) Centre for Psychosocial and Disability Research at Cardiff University: Architect of misery?

If we know anything at all about the Work Capability Assessment for sickness and disability benefits, we know that it doesn’t work. In fact, it kills. There is a wealth of evidence proving this, and if any readers are in doubt, please take a look at the other article I am publishing today, MPs tell their own Atos horror stories.

Much has been made of this fact, without properly – in my opinion – addressing why it doesn’t work. The apparent intention is an honourable one – to help people who have been ‘parked’ on disability benefits back into work, if it is now possible for them to take employment again, and to provide support for those who cannot work at all. What went wrong?

Let’s start at the beginning. The WCA is, at least nominally, based on the biopsychosocial model developed by George Engel. He wanted to broaden the way people think about illness, taking into account not only biological factors but psychological and social influences as well. He contended that these non-biological influences may interfere with a patient’s healing process.

The idea has been developed to suggest that, once identified, the non-biological factors inhibiting healing would be neutralised via a variety of support methods. Stressful events in a person’s life or environmental factors are acknowledged as having real effects on their illness, and it can be seen that this confers a certain amount of legitimacy on symptoms that are not currently explainable by medicine.

Engel stated, in 1961, “Many illnesses are largely subjective – at least until we as observers discover the parameters and framework within which we can also make objective observations. Hyperparathyroidism… was a purely subjective experience for many patients until we discovered what to look for and which instruments to use in the search.” He also warned that people engaged in research should “see what everyone else has seen and think what nobody else has thought” – as long as they don’t automatically assume that their new thought must be correct.

The Engels theory forms the basis of the system of insurance claims management adopted by US giant Unum when its bosses realised that their profits were being threatened by falling interest rates – meaning the company’s investments were losing value – and a rise in claims for “subjective illnesses” which had no clear biological markers – Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), Fibromyalgia, Chronic Pain, Multiple Sclerosis, Lyme Disease, even Irritable Bowel Syndrome (IBS).

As I wrote on Wednesday, Unum adapted the biopsychosocial model into a new medical examination that stripped it of its ‘bio’ and ‘social’ aspects in order to concentrate on the ‘psycho’ – with a relentless emphasis on an individual claimant’s beliefs and attitudes.

The new test aggressively disputed whether the claimant was ill, questioning illnesses that were “self-reported”, labelling some disabling conditions as “psychological”, and playing up the “subjective” nature of “mental” and “nervous” claims.   The thinking behind it was: Sickness is temporary. Illness is a behaviour – all the things that people say and do that express and communicate their feelings of being unwell. The degree of this behaviour is dependent on the attitudes and beliefs of the individual, as well as the social context and culture. Illness is a personal choice. In other words: “It’s all in the mind; these people are fit to work.” (as I mentioned in When big business dabbles with welfare; a cautionary tale)

Already we can see that this is a perversion of Professor Engel’s theory, using it to call an individual’s illness into question, not to treat it. Yet this is the model that was put forward to the Department of Social Security (later the Department of Work and Pensions) by its then-chief medical officer, Mansel Aylward, in tandem with Unum’s then-second vice president, John LoCascio.

Together they devised a new ‘All Work Test’ that would not actually focus on whether an individual could do their job; instead it would assess their general capacity to work through a series of ‘descriptors’. Decisions on eligibility for benefit would be made by non-medical adjudication officers within the government department, advised by doctors trained by Mr LoCascio. Claimants’ own doctors would be marginalised.

When New Labour came to power, Mansel Aylward was asked to change the test to reduce the flow of claimants with mental health problems. In came the ‘Personal Capability Assessment’, which again focused on what a person was able to do and how they could be supported back into work.

It is at this point that US IT corporation Atos Origin (now Atos Healthcare in the UK) became involved. The task of administrating the PCA was contracted out to a company which was taken over by Atos, meaning its employees – who had no medical training – could now assess claims for sickness and disability benefits, using the company’s Logical Integrated Medical Assessment tick-box computer system. These evaluations proved unreliable and the number of successful appeals against decisions skyrocketed.

So in 2003 the DWP introduced ‘Pathways to Work’, in which claimants – now labelled ‘customers’ – had to undertake a work-focused interview with a personal advisor. If they weren’t screened out by the interview, they would go on to mandatory monthly interviews where they would be encouraged to return to work and discuss work-focused activity. I can assure readers, from personal experience with Mrs Mike, that this activity remains a prominent part of the DWP’s sickness and disability benefit policy.

Mansel Aylward is no longer at the DWP, though. In 2004 he was appointed director of the UnumProvident Centre for Psychosocial and Disability Research at Cardiff University (it has since dropped the company title from its name). Was this as a reward for services rendered in getting Unum and its practices into the heart of the UK government?

Let’s have a look at some of the ‘descriptors’ that are being used to determine a claimant’s – sorry, customer’s – fitness for work in what is now called the ‘Work Capability Assessment’. I am grateful to Helen Goodman, Labour MP for Bishop Auckland, who provided this information during yesterday’s debate on the Atos WCA in the House of Commons. She said a person who…

“Cannot mount or descend two steps unaided by another person even with the support of a handrail”;

“Cannot, for the majority of the time, remain at a work station, either…standing unassisted by another person…or…sitting…for more than 30 minutes, before needing to move away in order to avoid significant discomfort or exhaustion”

“Cannot pick up and move a one litre carton full of liquid”;

“Cannot use a pencil or pen to make a meaningful mark”;

“Cannot use a suitable keyboard or mouse”;

“Is unable to navigate around unfamiliar surrounding, without being accompanied by another person, due to sensory impairment”;

“Is at risk of loss of control leading to extensive evacuation of the bowel and/or voiding of the bladder, sufficient to require cleaning and a change in clothing, not able to reach a toilet quickly”;

“At least once a month, has an involuntary episode of lost or altered consciousness resulting in significantly disrupted awareness or concentration”;

“Has an epileptic fit once a fortnight”;

“Cannot learn anything beyond a simple task, such as setting an alarm clock”;

“Has reduced awareness of everyday hazards leading to a significant risk of…injury to self or others; or…damage to property or possessions such that they frequently require supervision”;

“Cannot cope with minor planned change” such as a change to lunchtime;

“Is unable to get to a specified place with which they are familiar, without being accompanied by another person”

… is “fit for work”.

A person in the following category is also deemed fit for work, if: “Engagement in social contact with someone unfamiliar to the claimant is always precluded due to difficulty relating to others or significant distress experienced by the individual.”

Kate Green, Labour MP for Stretford and Urmston, added: “My constituents told me categorically last week that they believe that the whole system was deliberately designed and operated to trick them — to make them incriminate themselves and to catch them out.

“They firmly believe that the system is deliberately designed, not to assess and then help them into work if they are fit for it, but simply to stop paying benefits wherever possible.

“There are far too many instances of trickery and misleading people and of distorting what they have done, said and reported and drawing conclusions from that. That is happening far too often.

“It is an absolute disgrace that we should run a public assessment process in such a discredited way.”

It seems to be a result of Professor Aylward’s work that the main influence on government welfare reform has been a perversion of a perversion of a theory that has not been shown to work. Authentic evidence is disregarded by those in power, who clearly continue to persecute the sick while feeding the profits of private concerns.

I wonder what he would have to say, if he were to be confronted by the evidence of what his policies have done to the sick and disabled of this country – as spelled out, in the House of Commons, by MPs from many parties.

Afterthought: It should be noted that Professor Aylward is on record as having expressed doubts about the Work Capability Assessment and the current system, as run by the government, with the caveat that he has not been involved for several years.

He told the Black Triangle Campaign: “I will make myself aware … but I think that I’m a man of integrity … and if I think that the Work Capability Assessment … test or whatever … is not proper … I will speak out against it.”

In the light of what happened while he was at the DWP, I leave it to readers to judge whether he will.

When big business dabbles with welfare; a cautionary tale

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Atos, benefit, benefits, biopsychosocial, chronic, Coalition, Conservative, Department for Work and Pensions, descriptors, disability, Disability Living Allowance, disabled, DLA, DWP, Employment and Support Allowance, ESA, fatigue, fibromyalgia, Francesca Martinez, Frank Field, government, health, Incapacity, Incapacity Benefit, Jack Gilligan, John LoCascio, Labour, Liberal, Liberal Democrat, Lyme disease, Mike Sivier, mikesivier, model, Multiple Sclerosis, New Labour, pain, people, Peter Lilley, PIP, politics, sanctions, sick, syndrome, Tony Benn, Tony Blair, Tories, Tory, unum, Vox Political, WCA, welfare, work capability assessment

“Jack Gilligan, who was the Democratic governor of Ohio… said ‘You know there will never be democracy in America when big business can buy both parties and expect a pay-off, whichever one wins. And you know, a touch of that may possibly have spread in this direction.” Tony Benn.

I have been researching the relationship between US insurance giant (and lawbreaker) Unum and successive UK governments – Conservative, New Labour and Coalition – and the minimal research I have managed so far tells me that, if there’s one thing the Labour Party needs to do to ensure its electability in 2015, that thing is the expulsion of Unum and all private insurance firms, their subsidiaries, partner companies, and people who have worked with or for them, from any position of influence. Kick them right out!

Any government that fraternises with these vampires puts corporate profits above the well-being of its citizens. That is clear from what I have read. I want to go into certain aspects in detail, but before that, you deserve to know the details, so I’ve written a little story for you:

Once upon a time, a big insurance company had a little problem. It had been making money hand-over-fist by investing people’s premiums in high-interest portfolios, but interest rates were falling and new kinds of ‘subjective illness’ had arisen, for which medical science was not prepared – ‘chronic pain’, ‘chronic fatigue syndrome’, fibromyalgia, multiple sclerosis, Lyme disease.

The solution devised by the bosses was to reduce the number of successful claims it paid out, by aggressively disputing whether the claimant was ill. So the company skewed its medical examinations to its own favour by questioning illnesses that were “self-reported”, labelling some disabling conditions as “psychological”, and playing up the “subjective” nature of “mental” and “nervous” claims.

“Sickness is temporary,” they said. “Illness is a behaviour – all the things that people say and do that express and communicate their feelings of being unwell. The degree of this behaviour is dependent on the attitudes and beliefs of the individual, as well as the social context and culture. Illness is a personal choice.” In other words: “It’s all in the mind; these people are fit to work”.

Around the same time, a small country had a big problem with people claiming out-of-work benefit because they were ill. This was not a problem because they were lying about being ill – fraud amounted to less than one per cent of claims. Nor was it a problem because too many people were claiming – benefit levels were among the lowest of any countries nearby, and claims were on a par with those other countries.

No, the problem was that the man running the system, whose name was Peter**, wanted to make money out of it.

So he hired the boss of the big insurance company, whose name was John***, and asked him to help out. John said, “We have a great test that you can use! Instead of asking whether someone can do their job, you assess their general capacity to work, with a series of – we call them – descriptors. One could say the person ‘Is unable to cope with changes in the daily routine’, ‘Is frightened to go out alone’. Then the results get passed on to different people – adjudication officers – who judge whether they deserve your benefit. But the clever bit is that these officers aren’t doctors – the customer might be saying they’re sick but medical evidence has nothing to do with what the test is about! We’ll train your adjudicators – for a price. We’ve even got a sexy name for the test: It’s bollocks!”*

Off went Peter to try it and, lo and behold! The rise in claimants came to a halt, as if by magic. But it wasn’t magic. It was bollocks.

Meanwhile, the insurance company was making out like a bandit. Not only was it now at the heart of the small country’s government, it was able to make money from the claimants as well. Before the new rules came into effect, it advertised for customers, saying the new system meant “if you fall ill and have to rely on state incapacity benefit, you could be in serious trouble!”

Before long, the big insurance company found it was even bigger, with a quarter of all its post-tax income being paid by people in the small country.

Meanwhile, back at home, people had started to complain about the big company. It was a big, NASTY company, they said, because it had forced them to accept less when they claimed than their policies offered. The government there found that the big company had relied too much on in-house professionals; had constructed doctors’ or examination reports unfairly, for its own benefit; had failed to evaluate claimants’ conditions in their totality; and had placed an inordinate burden on claimants to justify why they should receive the benefits for which they had paid. Many claims were found to need re-examination.

That did not make a scrap of difference to the people running the sickness benefit system in the small country that had asked for the big nasty insurance company’s help. An election had happened and Peter had been asked to leave, but the new people in charge, Frank**** and Tony*****, were keen to capitalise on what had gone before and transform their welfare system into a new marketplace – a source of revenue, profitability and economic growth.

With help from the big nasty insurance company, they decided that the solution was not to cure the sick – or even to prevent their sickness in the first place – but to convince them that work is therapeutic, aids recovery and is the best form of rehabilitation. In other words, bollocks*. This way, with the help of the big nasty company’s bollocks* tests and adjudicators who based their decisions on bollocks*, they could say the problem was with the person who had the illness. Their behaviour and beliefs became the focus of the government’s moral judgement and action. If they did not change their ways, then sanctions would be used as a “motivational tool” – and people would be starved back into work.

And that, dear child, has continued to this very day! People claiming sickness or disability benefits in the small country, which is called the United Kingdom, have to take a test in which medical evidence plays a tiny role, run by people who are not doctors and judged by people who are not doctors. Many of these decisions have been found to be unfair, and have often been found to have failed to evaluate claimants’ conditions in their totality – which is why people with terminal cancer have been found fit for work. Many claims have been found to need re-examination.

You can see the hand of the big nasty insurance company at work, can’t you!

That is because the big nasty insurance company, which is called Unum, has been at the heart of the small country’s government ever since it was first invited in. And they intend to live happily ever after, at the public’s expense.

“A lot of people think that disabled people don’t have sex, but this is not true, because the government are screwing us hard.” Francesca Martinez, The News Quiz, BBC Radio 4, January 11, 2013.

*I should apologise for the fault in my computer. Every time I try to type – I’ll just cut and paste it in here – “the biopsychosocial model” or any combination of those words, it comes out “bollocks”. Sorry!

**Peter Lilley

***John LoCascio

****Frank Field

*****Tony Blair